Discussion in 'Action Alerts and Advocacy' started by Dolphin, Jun 12, 2012.
I thought I'd set up a thread specifically on the (oral/written) testimony by members of the public.
There is already this thread http://forums.phoenixrising.me/inde...ac-testimony-cfs-patient-advocate-blog.17914/ for Dr Grobstein's CFSAC testimony.
Janelle Wiley will be giving her oral CFSAC testimony tomorrow (Wednesday), sometime between 3:30pm and 4:30pm (Eastern Time).
She will talk about the ME Analysis project she was heavily involved with: http://evaluatingpace.phoenixrising.me/homepageanim.html . Some other members of Phoenix Rising have also been involved in the projected.
She also talks about the paper:
Janelle's testimony can be read in full, complete with two images at: http://forums.phoenixrising.me/index.php?pages/CoveritLive1/
Just scroll down to: 4:04-4:08 i.e. towards end.
Lily Chu MD's informative CFSAC testimony: http://www.occupycfs.com/2012/06/13/cfsac-comments-from-dr-lily-chu/
Mary M. Schweitzer PhD's CFSAC testimony: CDC must end use of toolkit and the Reeves "empirical" definition
Jeri McClure Kurre’s Testimony:
Jennie Spotila who gave testimony by phone today:
“Keep Track. Keep Asking”: http://www.occupycfs.com/2012/06/14/keep-track-keep-asking/
An alternative link which has the testimony on its own is:
Matthew Lazell-Fairman's testimony is now up at http://www.occupycfs.com/?p=297
PANDORA's CFSAC testimony (as read by Tina Marie Tidmore): .
All the written testimony has finally be posted:
This is both the written text to accompany oral testimony as well as people who just gave oral testimony.
Thanks to everyone who made the effort.
You can also try a Google Site Search
Separate names with a comma.