Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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CFSAC June 2012: Patient/similar Testimony (oral/written)

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Jun 12, 2012.

  1. Dolphin

    Dolphin Senior Member

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    I thought I'd set up a thread specifically on the (oral/written) testimony by members of the public.
     
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  2. Dolphin

    Dolphin Senior Member

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  3. Dolphin

    Dolphin Senior Member

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    Janelle Wiley will be giving her oral CFSAC testimony tomorrow (Wednesday), sometime between 3:30pm and 4:30pm (Eastern Time).
    She will talk about the ME Analysis project she was heavily involved with: http://evaluatingpace.phoenixrising.me/homepageanim.html . Some other members of Phoenix Rising have also been involved in the projected.
    She also talks about the paper:

     
  4. Dolphin

    Dolphin Senior Member

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    Janelle's testimony can be read in full, complete with two images at: http://forums.phoenixrising.me/index.php?pages/CoveritLive1/
    Just scroll down to: 4:04-4:08 i.e. towards end.
     
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  5. Dolphin

    Dolphin Senior Member

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    WillowJ likes this.
  6. Dolphin

    Dolphin Senior Member

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  7. Dolphin

    Dolphin Senior Member

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  8. Dolphin

    Dolphin Senior Member

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  9. Dolphin

    Dolphin Senior Member

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    Karen Lambert


     
  10. Dolphin

    Dolphin Senior Member

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  11. jspotila

    jspotila Senior Member

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  12. Dolphin

    Dolphin Senior Member

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    PANDORA's CFSAC testimony (as read by Tina Marie Tidmore): .
     
  13. Dolphin

    Dolphin Senior Member

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