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Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
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CFSAC June 2012: Patient/similar Testimony (oral/written)

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Jun 12, 2012.

  1. Dolphin

    Dolphin Senior Member

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    I thought I'd set up a thread specifically on the (oral/written) testimony by members of the public.
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  2. Dolphin

    Dolphin Senior Member

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  3. Dolphin

    Dolphin Senior Member

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    Janelle Wiley will be giving her oral CFSAC testimony tomorrow (Wednesday), sometime between 3:30pm and 4:30pm (Eastern Time).
    She will talk about the ME Analysis project she was heavily involved with: http://evaluatingpace.phoenixrising.me/homepageanim.html . Some other members of Phoenix Rising have also been involved in the projected.
    She also talks about the paper:

  4. Dolphin

    Dolphin Senior Member

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    Janelle's testimony can be read in full, complete with two images at: http://forums.phoenixrising.me/index.php?pages/CoveritLive1/
    Just scroll down to: 4:04-4:08 i.e. towards end.
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  5. Dolphin

    Dolphin Senior Member

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  6. Dolphin

    Dolphin Senior Member

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  7. Dolphin

    Dolphin Senior Member

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  8. Dolphin

    Dolphin Senior Member

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  9. Dolphin

    Dolphin Senior Member

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    Karen Lambert


  10. Dolphin

    Dolphin Senior Member

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  11. jspotila

    jspotila Senior Member

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  12. Dolphin

    Dolphin Senior Member

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    PANDORA's CFSAC testimony (as read by Tina Marie Tidmore): .
  13. Dolphin

    Dolphin Senior Member

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