May 12, 2017 Is International ME/CFS and FM Awareness Day
International ME/CFS and FM Awareness Day is May 12th, 2017. Jody Smith shares some information about upcoming events and ways you can be heard ...
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CFSAC January 2017 public comments deadline soon

Discussion in 'General ME/CFS News' started by Kati, Dec 29, 2016.

  1. Kati

    Kati Patient in training

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    Good Afternoon.


    As indicated in the Federal Register Notice of 11/29/2016, a meeting of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) will be held in Washington, D.C. on Thursday, January 12, 2017, from 12:00 to 5:00 p.m. ET, and Friday, January 13, 2017, from 9:00 to 5:00 p.m. ET. For more information about the meeting, please visit:


    https://www.federalregister.gov/doc...e-chronic-fatigue-syndrome-advisory-committee



    As stated in the notice, the Committee welcomes input on any topic related to ME/CFS. However, please be advised that the Committee is particularly interested in receiving comments and suggestions regarding specific issues to be discussed during the meeting. Such topics include:


    • school accommodation issues
    • methods/programs for meaningful stakeholder engagement
    • clinical care and medical education challenges
    • and/or the stigma associated with this disease

    As instructed in the FRN, please email the CFSAC general inbox if you’d like to speak to the committee.
     
  2. Denise

    Denise Senior Member

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    Deadline to submit written public comment (up to 5 pages, single-spaced, 12 point font) to the Committee prior to the 12th please email them no later than Thursday, January 5th 2017, (5pm Eastern time).
     
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