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CFSAC December 13-14, 2017 Meeting Agenda & Call-In Info Posted

Discussion in 'General ME/CFS News' started by Gemini, Dec 8, 2017.

  1. Gemini

    Gemini Senior Member

    East Coast USA
    December 13-14, 2017 CFSAC Meeting (In Person)

    This Chronic Fatigue Syndrome Advisory Committee (CFSAC) meeting will take place at the Hubert H. Humphrey Building, 200 Independence Avenue, Suite 800, S.W., Washington, D.C. 20201.

    Call in number: (888) 469-1760
    Participant passcode: 4510479

    Day 1
    9:00 a.m. Call to Order, Roll Call, Logistics
    CDR Gustavo Ceinos, MPH Designated Federal Officer

    9:10 a.m. Opening Remarks
    Faith Newton, Ed.D Chair, CFSAC
    Nicole Greene Acting Director, OWH
    Don Wright, M.D., M.P.H.Acting Assistant Secretary for Health

    9:25 a.m. Swear In two of three new CFSAC Members: Don Wright, M.D., M.P.H.

    9:30 a.m. Approval of minutes from the last CFSAC meeting: CFSAC Members

    9:45 a.m. Updates of implementation of recommendations from the last CFSAC meeting
    CDR Gustavo Ceinos, M.P.H.Designated Federal Officer
    Ermias Belay, M.D.Centers for Disease Control and Prevention

    10:00 a.m. Agency Updates and Questions
    Centers for Disease Control and Prevention: Ermias Belay, M.D.
    Food and Drugs Administration: Keith Hull
    Social Security Administration: Michele Schaefer

    11:00 a.m. Presentation from Liaison Organizations
    Simmaron Research, Inc: Courtney Miller
    Massachusetts CFIDS/ME & FM Association: Leah Williams
    ME Action: Terri Wilder

    11:45 a.m. Report from the Medical Education Work Group: Gary Kaplan, M.D.Working Group Chair

    12:30 p.m. Lunch

    1:30 p.m. Discussion Medical Education Work GroupPresentation and Recommendations: CFSAC Members

    2:30 p.m. Public Comments: Members of the Public

    3:30 p.m. Adjourn

    Day 2

    9:00 a.m. Call to Order, Roll Call :CDR Gustavo Ceinos, MPHDesignated Federal Official

    9:10 a.m. Opening Remarks: Faith Newton, Ed.D Chair, CFSAC

    9:20 a.m. Agency Updates
    National Institutes of Health: Vicky Whittemore, Ph.D
    Health Resources & Services Administration: CAPT Sophia Russell, DM, MBA, RN
    Agency for Healthcare Research & Quality:Theodore Ganiats, M.D.
    Department of Veteran Affairs Drew A. Helmer, M.D., M.S.

    11:00 a.m. Public Comments: Members of the Public

    12:00 p.m. Lunch

    1:00 p.m. Report from the Pediatric Education Working Group and Parent Information Center Update:
    Faith Newton, Ed.D Chair, CFSAC and Carmen Sanchez:Education Program Specialist, US Departmentof Education

    1:45 p.m. Break

    2:00 p.m. Research Update on Adults ME/CFS: Jose Montoya, M.D. CFSAC Member

    3:00 p.m. Research Update on Pediatric ME/CFS
    (Calling in) Rosamund Vallings, M.D.Invited Speaker, Howick Health and Medical Auckland, New Zealand

    4:00 p.m. Closing Remarks and Next Steps: Faith Newton, Ed.D and CDR Gustavo Ceinos, M.P.H.

    5:00 p.m. Adjourn

    **Final agenda subject to change due to availability of speakers

    EDIT: add link
    Last edited: Dec 9, 2017
    MEMum and Dolphin like this.
  2. Gemini

    Gemini Senior Member

    East Coast USA
    Meeting starts tomorrow.
    Tom Kindlon likes this.
  3. Gemini

    Gemini Senior Member

    East Coast USA
    Day 2 of meeting starts in one hour.

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