Transcript of Dr. Koh's opening remarks When the video cut in right as he was sitting down, I was ticked off that I missed his speech, then I hit the "CC" button and found his remarks at the top. I did the best I could to copy and paste, but the Closed Captioning updates so fast that it keeps scrolling down and I lose the words that were copied. Anyway, I think I got everything but maybe the last couple lines from his talk: 10/13/10 CHRONIC FATIGUE SYNDROME MEETING WITH START SOON......... Dr. Koh (Assistant Secretary of Health) "I am one who is charged with passing on those recommendations to the top leadership including the secretary and want to make sure we are making progress in as many areas as possible. The scientific conversations and discussions on chronic fatigue syndrome continue to progress and I know NIH had their first workshop on XMRV last month. Many issues to discuss about XMRV. Again many questions to be sorted out. As that scientific conversation goes on there are equally important questions about disability coverage. Today there will be a very good and exlis sit [explicit?] conversations about denial of disability and opening conversations with the committee on the new affordable care act and how it acts on care, testing, and treatment issues. These are all very, very important for us at the department and important to the community, to the country, we are pleased to host these meetings on behalf of the nation. I am also pleased that we have as Dr Jones has noted some 3 hours of public testimony allocated. We look forward to hearing from those commenting and answers to the important questions raised on CFS. In closing, I want to thank you, this is an important time to address those key issues. We are also doing this work in the context of implementation of the affordable care act that you are going to hear about in this meeting." The chair, Christopher Snell, admitted sheepishly that he has not followed-up with Dr. Koh during the past 6 months since the last CFSAC meeting. He will "try to do a bit better" at talking with Dr. Koh and finding out which CFSAC recommendations are going somewhere. He thinks "talking a bit more could be helpful." Well, DUH! C'mon people! We're dying a slow excruciating death here!