Discussion in 'Upcoming ME/CFS Events' started by Nielk, Dec 11, 2013.
"without a lot of traction outside the CFS community"
This is absurd on so many levels.
I'll be very curious as to what the major researchers think of this definitions and if they comply with it at all. But, I suppose will just have to wait and see what the final product is. I suppose every country to could go of on their own and develop their own definition. That would look pretty embarrassing to the IOM!!!!
This not-exactly-flattering obit in the BMJ tells us McEvedy's long dead, so I guess he'll never know just how very, very wrong he was.
fwiw, my written testimony to CFSAC. I didn't speak.
This is very important, thanks for checking that out and reminding us!
Lee is a federal agent making a not so veiled threat that the highest level of constitutionally protected speech (political speech) by a disabled community will be punished.
The fact that she apparently read the threat from a prepared text makes it worse; these are her carefully chosen words; she had time to think about it; it wasn't that she got flustered and said something off the cuff.
Her statement was clearly unconstitutional. This is very serious. She has done three things to squelch free political speech (1) FUBARed the CFSAC meeting, (2) premeditatedly threatened disabled advocates for their political speech and (3) threatened three CFSAC members for political speech.
The Supreme Court has held freedom of political speech to be the bedrock of the Constitution. To paraphrase Justice Robert Jackson: If there is one fixed star in our constitutional constellation, it is freedom of speech; the government may never impose an orthodoxy of opinion on its citizens.
Dr. Koh should hang his head in shame for standing by Dr. Lee in his letter to Mary Dimmock and allowing her to address her comments to an international community of patients.
The primacy of freedom of speech is the thing I like most about the US constitution.
It is however already severely compromised by the ubiquitous use of public relations and the failure of investigative journalism.
Erica Verillo wrote a blog on the CFSAC meeting.
HHS TO ME/CFS COMMUNITY: WE DON'T CARE WHAT YOU THINK.
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