1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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CFS Treatment Survey: Avoidance vs. Other Approaches

Discussion in 'Addressing Biotoxin, Chemical & Food Sensitivities' started by slayadragon, Feb 19, 2012.

  1. slayadragon

    slayadragon Senior Member

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    Over the past year or so, the Cure Together has been asking people with CFS which treatments have worked for them.

    ??http://curetogether.com/chronic-fatigue-syndrome/treatments/

    For understandability, I reorganized their responses.

    ??As of the beginning of September, 1600 people with CFS responded. (At some point, I will go back and update this.)

    All forms of exercise and all antidepressants yielded more than 50% of patients stating that they got somewhat worse or much worse as a result.

    In general, it seems to me that "Avoidance" activities came up very highly rated on this list. I'm glad that this forum has been added to Phoenix Rising, therefore!

    Best, Lisa

    *

    ?????From 9/4/2011
    ?
    % Reporting Mild/Moderate Improvement

    ??80%+?
    Low stim environment.

    ??70%+?
    Frequent rest breaks. Oxytocin (10).??

    60%+?
    Rest.
    Personal development. Mindfulness.?
    T3.
    Avoid biotoxins.
    Wheelchair.??

    50%+
    ?Ignore people who think ME/CFIDS is not real.
    Meditation. Change job.?
    LDN. Ampligen (6).?
    Stimulants. Ritalin. Klonopin.?
    Avoid mold. Avoid allergens. Diet changes. Reduce sugar.
    ?Orthomolecular. Sinus treatments. FIR sauna.
    Invert body position.?Qi Gong. Massage. Lymphatic Massage.

    ??40%+
    ?Go to bed early/sleep longer. Recuperation.?
    Treat yeast. Probiotics.
    Treat methylation.?
    Avoid alcohol. Avoid gluten. Avoid dairy. ?
    Baclofen. Immunovir. Xanax. Antivirals. Ultramadol. Ibuprofen. Guaifenesin.?
    Oral magnesium. B12 Injections.?
    Stay well-hydrated. Electrolyte beverages.?
    Diaphragmatic breathing. Cranial Sacral. Chiropractic. Yoga. Stretching.?
    HBOT (7).??

    30%+?
    ARVs (7). Antibiotics.?Tylenol. Naproxen. Aspirin.?
    Provigil. Benadryl. Cymbalta. Trazadone. Neurontin. Wellbutrin.
    ?D-Ribose. Myers Cocktail. Malic acid. Topical magnesium.
    Vitamin D. 5HTP. Sublingual B12. Cerefolin.
    Betaine Hcl. NAC. Liposomal glutathione.
    Testosterone. Melatonin. Cortef.?
    Kinesiology. Reiki. Tai Chi. Orthostatic conditioning.
    Soak feet in cold water. Cool shower following exertion.
    EFT. Distract attention from symptoms. Amygdala retraining. Ayurveda.
    Eat more produce.
    Root canal/cavitation removal.??

    20%+?
    B Vitamins. Omega 3, 6, 9. ALA. CoQ10. DMG. Carnitine. Iodine.
    Chinese herbs. Homeopathy.?
    Xyrem. Altenol. Celexa. SSRIs. Effexor. Amitriptyline. Antihistimines. Caffeine.
    ?Detox foot baths. Chelation. Ionized water. Skin Brushing. Osteopathy.
    ?Neurofeedback. Lightning Process. CBT. Psychotherapy.
    Exercise. GET.??

    10%+??
    Doxycycline. Doxylamine. Zoloft. Prozac. Paroxetine.?
    Gingko Biloba. GABA. Glucosamine/Chondroitin. EPA.
    NADH. MSM. Monolaurin. Inosine. Undenatured whey. SAM-E.
    ?Brainwave CDs. Rolfing. Rebounder.??

    Less than 10%
    ?Vitamin E. Cats Claw. Garlic. Alcohol.
     

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