August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
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CFS treatment in Ireland?

Discussion in 'ME/CFS Doctors' started by cady, Nov 1, 2016.

  1. cady

    cady

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    Hi,
    Has anyone seen Dr John Lambert in Dublin for CFS? I'd like to get a sense of his approach to treating CFS before making an appointment.
    In addition, has anyone had any luck getting treated for CFS in Ireland, including Northern Ireland? Doctors with an interest in CFS seem very hard to come by and I'm beginning to think that going abroad for treatment would be a wiser investment.
    Thanks
     
  2. Spiderbaby

    Spiderbaby

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    Hi Cady,

    Sorry I am only getting back to you now, I only visit here now and again.
    To answer your more general question first, there is no specific CFS/ME specialist in Ireland, and from my own experiences I have not come across any doctor who is successfully treating people, however others on here might different experiences.
    What there is however is a number of doctors from varying backgrounds (Infectious disease/ allergies/ endocrine/ gastro) dabbling in the area of CFS, both for their own curiosity and probably more pertinently their bank balance.
    Now, not knowing your specific situation and how you were diagnosed with CFS, somebody like John Lambert might indeed be able to treat you if you suspect an infectious disease component.
    However, as I have found to my own detriment, many of these doctors, whether acting in good faith or not, are pigeon holed in their specific sub-discipline and often find it hard to look beyond say the symptoms you may have in that particular area.
    Looking at John Lambert's website, he seems to be very much focused on infectious disease, with a particular focus on Lyme treatment, however his testing and treatment seems to follow the conventional ELISA/Western Blot protocols, with a standard months dose of relevant antibiotics. However he does seem aware of the testing going on in Germany http://www.rte.ie/news/2016/1115/831747-lyme-disease/
    Lyme testing and treatment in and of itself is a very controversial area, as I am sure you have seen on here so tread carefully, and perhaps start with what tests your GP can run for you first before looking further a field.
    If you have any further questions about traveling abroad feel free to ask and check out what specialists in Europe such as KDM are doing.
     
  3. BurnA

    BurnA Senior Member

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    If you have POTS ( or other cardiac issues ) the falls and blackout clinic in St. James, run by Dr. Rose Anne Kenny, is worth a visit. Apart from that I can't add anything.
     
  4. Abha

    Abha Abha

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    Hi Cady and others here,

    Have you had any luck with Dr John Lambert in Dublin?If so I would like to know about his treatment of your illness?

    Re ME/CFS in N.Ireland from my experience it is almost non existent.I never saw anyone who had much to offer me.Dr Enlander(NY/Belfast) did come to Belfast(Landsdowne Hotel) about 5 years ago.There he gave a lecture on ME/CFS treatment at that time.He also spoke to some MLAs and to the Medical authorities/Govt? too.I doubt if any of his ideas/workshops were followed up.Dr Willie Weir(Belfast/London) chaired that meeting.

    The Dr in charge of ME/CFS(RVH) was under investigation by the GMC....and then he resigned.I think he had a clinic of his own

    .I was advised by the Ombudsman's Office at one stage to go through the system again.My GP did write to the RVH(Belfast) and the Immunologist there advised that I go elsewhere as there was an 80 week waiting list....so much for ME/CFs in Northern Ireland....God help you!
     

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