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CFS special Swedish Social Medical Journal

Dolphin

Senior Member
Messages
17,567
From: Dr. Marc-Alexander Fluks



Source: SocialMedicinsk Tidskrift

Vol. 93, #4.

Date: September 28, 2016

URL: http://www.socialmedicinsktidskrift.se/index.php/smt/announcement/view/51

Ref: Translation: Google

http://translate.google.com/#sv/en/



Theme: While life is passing by - On the disease ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome)



[Editorial]


While life is passing by

------------------------


While life goes past a special theme that aims to describe the research front for what was previously called chronic fatigue syndrome, and now known as myalgic encephalomyelitis/Chronic Fatigue Syndrome (ME / CFS). The disease has a number of years primarily been seen as a psychosomatic phenomenon and patients are therefore referred for psychiatric treatment although already in 1969 was classified as a neurological disease in the WHO classification of diseases. We are right now in a paradigm shift in which the disease's identity as a biomedical disease has an increasingly greater impact. Some studies have described the prevalence reported that between 0.4 to 2 percent of the population have the symptoms that characterize the condition.

The majority are women in the age group 20-40 years. To reflect the illness presented both case studies and current research. The starting point is the case histories where victims report their life experiences since they suffered from ME/CFS. Researchers in Sweden and internationally reported research was focused today regarding the causes, treatment and social consequences. The knowledge of ME/CFS is low not only in health care but also in health and social security system in Sweden, which has been a key driver of this special issue.



Fredrik (pseudonym)

One evening in January - a story in telegram style

http://translate.google.com/transla...skrift.se/smt/index.php/smt/article/view/1449


Sten Helmfrid

Studies of cognitive behavioral therapy and progressive exercise in ME/CFS is misleading

http://translate.google.com/transla...skrift.se/smt/index.php/smt/article/view/1450


Leonard Jason, Samantha Fragale

The importance of the case definition for ME/CFS myalgic encephalomyelitis and chronic fatigue syndrome

http://translate.google.com/transla...skrift.se/smt/index.php/smt/article/view/1451


Leonard Jason, Samantha Fragale

The Role of Case Definitions in Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

http://www.socialmedicinsktidskrift.se/smt/index.php/smt/article/view/1452


Ingela Wiman

The correct percentage life

http://translate.google.com/transla...skrift.se/smt/index.php/smt/article/view/1453


Anne Ortegren

Report from the 40 square meter house arrest

http://translate.google.com/transla...skrift.se/smt/index.php/smt/article/view/1454


Carl-Gerhard Gottfries

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome - Historical aspects from a Swedish perspective

http://translate.google.com/transla...skrift.se/smt/index.php/smt/article/view/1455


Emma Hagqvist

The juggle and struggle of everyday life. Gender, division of work, work-family perceptions and well-being in different policy contexts

http://www.socialmedicinsktidskrift.se/smt/index.php/smt/article/view/1456


Per Julin

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

- Current diagnostics, rehabilitation and research

http://translate.google.com/transla...ktidskrift.se/index.php/smt/article/view/1481


Jonas Blomberg

Infection-induced autoimmunity in ME/CFS. An explanation

http://translate.google.com/transla...ktidskrift.se/index.php/smt/article/view/1482


Henrik Fransson, Kerstin Heiling

Invest in ME Research 2016

http://translate.google.com/transla...ktidskrift.se/index.php/smt/article/view/1483


Henrik Fransson

Relative History ME/CFS

http://translate.google.com/transla...ktidskrift.se/index.php/smt/article/view/1484


Camilla Gillberg

Children and young people with ME/CFS

http://translate.google.com/transla...ktidskrift.se/index.php/smt/article/view/1485


Camilla Gillberg

ME/CFS in school

http://translate.google.com/transla...ktidskrift.se/index.php/smt/article/view/1486


Anna Franklin

Health situation of ME/CFS sufferers

http://translate.google.com/transla...ktidskrift.se/index.php/smt/article/view/1487


Daniel Peterson

The Art and Science of ME/CFS: A 2016 Synopsis

http://www.socialmedicinsktidskrift.se/index.php/smt/article/view/1488
 

Dolphin

Senior Member
Messages
17,567
Looks like this one would be of interest to me and a few other people. Unfortunately I don't see myself learning Swedish.

Studies of cognitive behavioral therapy and graded exercise in ME/CFS are misleading

Studier av kognitiv beteendeterapi och gradvis ökad träning vid ME/CFS är missvisande

Sten Helmfrid

Docent i fysik, Riksföreningen för ME-patienter.

E-post: sten.helmfrid@bredband.net.

Det har publicerats ett flertal studier av kognitiv beteendeterapi (KBT) och gradvis ökad träning vid kroniskt trötthetssyndrom (ME/CFS) utifrån en behandlingsmodell som säger att sjukdomen vidmakthålls av kognitiva processer. Trots att studierna varit bristfälliga och modellen saknar vetenskapligt stöd, framställs behandlingarna ofta som evidensbaserade. Studierna är oblindade och bygger på subjektiva utfallsparametrar. Det saknas objektiva mått på följsamhet. Patientgrupperna är otydligt definierade och inkluderar ofta trötta patienter med psykiatriska diagnoser. Den bakomliggande modellen har inget teoretiskt stöd och motsägs av fysiologiska fynd. Enkäter från patientorganisationer visar att KBT inte ger bättre resultat än placebo och att gradvis ökad träning leder till försämring. Kognitiv beteendeterapi och gradvis ökad träning vid ME/CFS kan därför inte betraktas som evidensbaserade interventioner.



There have been a number of studies on Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET) for ME/CFS based on a treatment model where the disease is perpetuated by cognitive processes. Although the studies are flawed and the model lacks scientific support, the treatments are described as evidence based. The studies are non-blinded and rely on subjective outcomes. There are no objective measures of adherence. The diagnostic criteria vary, and the participating patients often have one or several psychiatric diagnoses apart from suffering from chronic fatigue. The underlying model has no theoretical foundation and is at odds with physiological findings. Surveys suggest that the efficacy of CBT is no better than placebo and that GET is harmful. Therefore, cognitive behavioral therapy and graded exercise therapy for ME/CFS are not evidence based.
 
Messages
2,158
Wow, that one on CBT GET is a good summary. Can we paste it on the foreheads of White, Wessley, Crawley etc.