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CFS Selfies Posts Good Days, Bad Days Photos on Instagram

Discussion in 'General ME/CFS News' started by Never Give Up, Sep 16, 2015.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    leela, maddietod, Hutan and 4 others like this.
  2. lnester7

    lnester7 Seven

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    USA
    Seeing those selfies makes me wonder if I am the only one that gets sooo inflamed in the face, when I take picture you can see one side drooping and swollen, at work now people close to me tell me WOW you look so swaollen today when I am in bad shape people can tell!!!
     
  3. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    Funny you should mention it, the young woman who started CFS Selfies says in this video
    That her face swells up, too, and that the project will help people to compare notes on such things.

    She got sick when she was 10 and is now 16.

    It's a 19 minute video.
     
    lnester7, JaimeS and beaker like this.
  4. ahimsa

    ahimsa Senior Member

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    I don't think my looks change that much from good day to bad day.

    Several times people have told me that I'm looking great when I'm feeling like death warmed over. And I've had other days where I'm feeling okay, relatively speaking, and people tell me that I'm looking very tired or pale or something.

    So I don't think this photo thing would work for me.

    But if it is helping others to raise awareness of ME then that's great!
     

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