A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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CFS mentioned at Oprah.com

Discussion in 'General ME/CFS News' started by Nielk, May 23, 2014.

  1. Nielk

    Nielk

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    http://www.oprah.com/health/do-you-have-an-autoimmune-disease-mystery-illness

     
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  2. Dreambirdie

    Dreambirdie work in progress

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    Interesting. Oprah was not open to hearing anything about this disease during the 25 years that she did her show on network TV. I wonder what caused the shift in thinking?
     
    manna likes this.
  3. waiting

    waiting Senior Member

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    There was a lengthy article in "O" Magazine several years ago ... maybe 2005...?
     
  4. minkeygirl

    minkeygirl But I Look So Good.

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    Here's my problem with the quotes text in the link. IMO it is still minimizing just how devastating this disease is.

    I wish I was only tired for one day after a brisk walk. IF I could take a brief walk. I'm laid out after taking a shower or some days reaching for the remote.

    To say you're still tired after a full night sleep is an understatement of epic proportions. The exhaustion I feel when I wake is crippling. I'm not just tired, I can barely breath, open my eyes or get to the bathroom.

    And finding a specialist who understands. Should we just open the phone book? Who pays for this because My insurance sure won't.

    I find that a simplistic view of things from someone who has. I clue.
     
  5. Esther12

    Esther12 Senior Member

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    PR is used as a source for some of those links... I'm not sure how good the prognosis page is either, as it looks like they were written some time ago.

    We're famous!
     
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  6. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    wow, that's a start, though. Amazing. :)

    Let's write and thank her and give her a small amount of more information that we like.
     
    Last edited: May 24, 2014
  7. taniaaust1

    taniaaust1 Senior Member

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    I personally think it probably is due to the following " It's such an enigma that the Institute of Medicine is currently evaluating the diagnostic criteria to come up with an official definition"

    ..............

    Now would be a good time then for people to contact her and try to educate her on just how severe this disease really is. How it can actually kill etc. We currently have a doorway to get throu to her about this disease, I hope people use it. If we could get her understanding how this illness actually is, that would be HUGE.

    Id love to see Mark or Kina or someone else like that do an interview with her and share how worldwide we are left seeking out websites to find doctors and for treatment and management advice etc
     
    Last edited: May 24, 2014
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  8. manna

    manna Senior Member

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    i'm not getting the quoted article when clicking on the link provided in the OP?
     
  9. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    There are three pages, with about 5 diseases covered (two on most pages).
     
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  10. manna

    manna Senior Member

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    hi, thanks WillowJ but still can't find it on all 3 pages, must be me? not to worry
     
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  11. Valentijn

    Valentijn Senior Member

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  12. Valentijn

    Valentijn Senior Member

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    2nd half of the article on Page 2.
     
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  13. manna

    manna Senior Member

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    still not there on my pc. have switched off adblocker and done a ctrl+f page search for "chronic fatigue" on all 3 pages and looked? strange.
     
  14. Valentijn

    Valentijn Senior Member

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    If you go too far down, you'll be in a different article. But on page 2 it should start with a few paragraphs about Lyme, then CFS. It is a weird page setup which popup blockers or other anti-script features might not get along with. Basically multiple articles loading onto the same page in an automated and variable manner.
     
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  15. taniaaust1

    taniaaust1 Senior Member

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    I guess that could get their attention as they wont understand at all how as a patient group so many of us are actually unhappy about it.

    I cant with my computer get the page up to read it. I was going to comment.
     
  16. manna

    manna Senior Member

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    found it...you have to go to page 2 directlyy under the first article on page 1. if i use the "page 2" click at the bottom of the page, under the last article, it goes to page 2 of that article, not the top one, got it now.
     

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