New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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CFS/ME specialists in Japan

Discussion in 'ME/CFS Doctors' started by Jcj225, Oct 20, 2017.

  1. Jcj225

    Jcj225

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    Hi all,

    Long shot, but I moved here about 9 weeks ago from the UK and I’m sure this is what’s going on (everything else appears to be excluded) and it’s getting worse, and quickly. If anyone is in japan and knows of any specialists or doctors that have a special interest that would be so helpful.

    Thanks
     
    ivorin likes this.
  2. panckage

    panckage Senior Member

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  3. Daffodil

    Daffodil Senior Member

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    i once heard japan has the highest rate of CFS
     
  4. Jcj225

    Jcj225

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    I wouldn’t be surprised due to the amount of overwork here
     
  5. IThinkImTurningJapanese

    IThinkImTurningJapanese Moderator

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    We have a big problem conflating chronic fatigue and ME/CFS.
     
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  6. Jcj225

    Jcj225

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    That would also make sense - everyone looks tired here...
     
  7. Jcj225

    Jcj225

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    Thanks panckage. I have come across this doctor, I was hoping to find a doctor that uses more western treatments over traditional Eastern style treatments. Madarame seems focused on acupuncture and body balance etc
     
  8. IThinkImTurningJapanese

    IThinkImTurningJapanese Moderator

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    panckage likes this.
  9. IThinkImTurningJapanese

    IThinkImTurningJapanese Moderator

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    You may have your choice with Dr. Rong U, unless you're allergic to Eastern treatments. :cautious:
    He has some research experience with Systemic Lupus Erythematosus.
     
  10. Daffodil

    Daffodil Senior Member

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    I think this was real ME/CFS. long ago much earlier on in the illness, when people thought it was HHV-6 issues, they said that in Japan, people had more HHV6a and we have more HHV6b or something....i cant recall details....

    but maybe they do mix stuff up. i watched a very interesting document on hikkikomori(?) ..how hundreds of thousands of young men are becoming recluse and not leaving their rooms for years.
     
  11. Joh

    Joh Inactivist

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    Just putting my ME-ideas on Japan out there, maybe they could be leads (but probably don't help in your current situation).

    An article from 2017 about the situation in Japan (including a patient survey).
    People with ME in Japan are organizing a translation of Unrest into Japanese, so there are advocacy efforts. I'd try to reach an advocacy group for information.
    If I remember correctly there was a brain imaging study on ME done in Japan (very long shot, but maybe these researchers are/know doctors).

    Also I like the cat mascot at ME events. Japan1.jpg
     
    ChrisD likes this.
  12. Jcj225

    Jcj225

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    Hi Joh, would this be the RIKEN research group that did the study under dr Yasuyoshi wantabe being the main lead?
    Thanks for your reply.
     
  13. Joh

    Joh Inactivist

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  14. Jcj225

    Jcj225

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  15. Joh

    Joh Inactivist

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    Good luck! It must be very difficult with the additional language barrier. If it's any consolation, you're not alone with this struggle to find a doctor - a lot of people with ME/CFS were even after decades of illness never able to see a specialist or receive any treatment. Access to treatment is one of the things that is desperately needed and why advocacy is so important.
     
    CJB and IThinkImTurningJapanese like this.
  16. Jcj225

    Jcj225

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    Yes, I can see it’s a problem and the language doesn’t help. From reading I can see that it seems many people think that treatment of some kind early on is an important factor in their overall recovery so I want to do my best to make that happen while I’m feeling particularly terrible with what I’m 99% sure is cfs.
     
  17. TenuousGrip

    TenuousGrip Senior Member

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    I don't know anything about anything but what about Dr. Kunihisa Miwa ?

    If memory serves, he posted quite a few rather important papers about cardiac issues within the ME/CFS patient population. If he doesn't actually treat PWME I'm guessing that he might know who does ?

    Good luck !
     
  18. IThinkImTurningJapanese

    IThinkImTurningJapanese Moderator

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    TenuousGrip likes this.

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