Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
Discuss the article on the Forums.

Cfs/me/pots from vaccine

Discussion in 'General Treatment' started by sillysocks84, Jun 18, 2015.

  1. sillysocks84

    sillysocks84 Senior Member

    Messages:
    445
    Likes:
    346
    Has anyone's symptoms began after a vaccine? Do you know of anyone's who has? I know for a fact I was a healthy 26 year old before a dtap vaccine. That vaccine caused arm, head and same side of face numbness. It also made it difficult to recall words, light sensitivity, heavy legs, ataxia and general fatigue.

    I became pregnant and it seemed to go away. Now I'm 30 and have pots. I feel fatigued. Although I sleep well, I wake up exhausted.
    I'm tired of this, my son is turning two and I need energy... I guess, I'm hoping the trigger from the vaccine is something one of you understands better than I do and can help guide me a bit. I have tried very little in the supplement area so far.
     
  2. *GG*

    *GG* Senior Member

    Messages:
    6,156
    Likes:
    4,762
    Concord, NH
    You know there is a fund for people who have been damaged by vaccines? Not sure if this applies only to USA people?

    GG
     
  3. sillysocks84

    sillysocks84 Senior Member

    Messages:
    445
    Likes:
    346
    The problem is I didn't report it, because when I went back to the doctor he tried to convince me it was a weird sinus issue. He was a family doctor. I wanted to believe him. Then I found out I was pregnant 2 months later and a couple more months after that I noticed my symptoms were going away. It is too late for me to take that route.

    When it comes down to it, all I really need at this point is some relief. If I could go back in time and do things different I would.
     
  4. angee111

    angee111

    Messages:
    54
    Likes:
    131
    Hm.. it's not uncommon for people to have adverse reactions to vaccines and be permanently affected by them. I remember reading that it stimulates a part of the immune system not associated normally with a reaction to natural viruses/bacteria. The binders included in the vaccine may also be a factor (mercury and aluminium seem to be common ingredients in vaccines). For me, I don't believe it was solely the vaccine that caused my ill health, though I certainly believe it had a significant contribution. I remember a few hours after having been given the Gardasil vaccine, I began to feel lightheaded, weak and fatigued. The feeling lasted for a few weeks, but I seemed to be ok afterwards. This was in 2009. I only began noticing symptoms in 2010.
     
    sillysocks84 likes this.
  5. Kati

    Kati Patient in training

    Messages:
    5,466
    Likes:
    19,595
    Mwny people have onset of ME following a vaccination. Sad but true. And a myriad of other weird symptoms. The unfortunate part is that reporting adverse events from vaccines is highly disbelieved by physicians who are totally convinced that vaccines are safe.

    i would not be able to tell you if the vaccine is wrong and technically it could be a bad batch or an infected vials (molds, bacteria).

    It is also possible that the host (those who react) have a genetic variant predisposing them to an inflammatory response from what is in the vaccine. i think there is more research in that direction as of late.

    Welcome. You are not alone.
     
  6. David Hammond

    David Hammond

    Messages:
    42
    Likes:
    33
  7. sillysocks84

    sillysocks84 Senior Member

    Messages:
    445
    Likes:
    346
    I didn't speak up because at first I didn't want to believe it was from that and then it felt like it was just too late to report it.

    They really should have more research done in this area. Especially if they are the ones causing us these issues. I will see if I have metal toxicity next I suppose. Though I have spent so much money already trying to figure out my diagnosis. I've even wrongly been diagnosed with pah. Which I had a second opinion from a more valued hospital rule out. That was scary!

    But this is scary too... just when I get used to a symptom a new one comes a ling that worries me again.
     
  8. sillysocks84

    sillysocks84 Senior Member

    Messages:
    445
    Likes:
    346
    Thank you David! I joined. Next I need to test for toxicity and then I may start posting questions. For now I will stalk the group and see how everyone else is coping.
     
  9. Kati

    Kati Patient in training

    Messages:
    5,466
    Likes:
    19,595
    Personally I wouldn't jump into one theory or another when it comes to exactly what is wrong.

    The metal toxicity is one, but it is on the alternative side of medicine and not mainstream. So called chelation protocols and practices such as removing all your dental amalgams is again not mainstream.

    Be careful out there and wise with your money.
     
    Last edited: Jun 20, 2015
    SOC, sillysocks84 and Butydoc like this.
  10. sillysocks84

    sillysocks84 Senior Member

    Messages:
    445
    Likes:
    346
    I never got sick before my onset of symptoms. So I don't think medicine will be of help. I am set on the fact I was fine until the vaccine. There was a definite difference. If I test for metals and it shows low or none I won't chelate. However, given my situation I feel it is important to test for it to see if it may have effected my nervous system or something. I won't jump to anything without appropriate testing. But since a doctor got me into this in the first place, why would I want traditional medicine. I don't see it helping either. The whole rituximab thing...who knows... but hopefully they can square it all away with research soon.
     
  11. Kati

    Kati Patient in training

    Messages:
    5,466
    Likes:
    19,595
    i believe you that you never got sick before you got the vaccine. I believe that the vaccine could have made you sick.

    However we do not know for sure that people like you gets sick from the adjvants in the vaccine ( or exactly what was in the seringe), or from the immune stimulation that the vaccine did inside your body.

    In my opinion, you would be better served by being seen by a ME expert who will test your viruses and immune system functioning rather than some alternative practitioner who has a pet theory about vaccines.

    Many have been down that route and they are still here.

    The thing about vaccines, is that 99% of the patients (arbitrary number) are fine afterwards, you have to think that the remaining 1% is having a different response. It's not like that one shot got more mercury or arsenic or whatever compound.

    i am not saying at all that all vaccines are safe for everyone. i believe you. i am saying be careful about who you choose to trust.

    This said, my very best wishes. Know you are not alone. All the patients hanging out on this forums are still trying to find answers. You will find people choosing different modalities of treatments here, likely one which will suit you.
     
    Mij and SOC like this.
  12. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,614
    Likes:
    12,447
    South Australia
    I had symptoms within a day or two of a vaccination and could not walk two weeks later.

    I don't believe it is due to 'metal toxicity', which causes different (and acute) symptoms but chance factors with the vaccination inducing immunological dysfunction.

    When studying rats/mice, vaccines or the adjuvants used in vaccines are used as the standard protocols to induce autoimmune illness for study. Albeit in very high doses, but the effect of high doses simply increases the likelihood inducing such immune system states to a high level.

    Just one of thousands of articles:
    http://www.jleukbio.org/content/70/6/849.short
    "Modes of action of Freund’s adjuvants in experimental models of autoimmune diseases"
    December 2001 Journal of Leukocyte Biology vol. 70 no. 6 849-860

     
    Last edited: Jun 21, 2015
    Tammy and Wayne like this.
  13. sillysocks84

    sillysocks84 Senior Member

    Messages:
    445
    Likes:
    346
    @Kati can a general physician find an ME specialist to refer me to? I've tried telling doctors my weird symptoms. I've had echo, MRI, CT, full pulmonary function test time name a few. And since nothing was found I get the idea they aren't listening anymore. I keep getting asked if I have anxiety and if I would like a prescription.
     
  14. sillysocks84

    sillysocks84 Senior Member

    Messages:
    445
    Likes:
    346
    Thank you snow leopard. I appreciate anything I can learn about what is happening to me. I am sorry you've had such a horrible time. Can you walk again? I am so happy my ataxia hasn't come back. I don't want to think of it happening.

    What luck have you had in treatments? I hope you are finding help. It is hard being hit with something like this. When you go to the doctor you expect to leave there in better health or at least the same way.
     
  15. Kati

    Kati Patient in training

    Messages:
    5,466
    Likes:
    19,595
    hi @sillysocks84 I am not sure where you are from. I am in Canada. To go see a specialist in the US, all I needed to do was to phone that office and make an appointment.

    If you are from the US, things may be different especially in terms of insurance coverage if you have some. It would be preferable for you to know which specialist you want to see and not to rely on your GP for that because he/she might want to send you to a psych or a dr who doesn't have a clue and these kinds of consults are horrible.

    The tests you mentioned are typically normal for us patients with ME and similar neuro-immune diseases. What is needed is a ME expert to look at features we all have in common including disturbances of the immune system. Asking your GP would not be helpful amd it sounds like he's already have an idea on his own. Seek out the experts.

    Dr Kogelnik/Kaufman near San Francisco, Dr Montoya, Dr Cindy Bateman in Salt Lake City, Dr Klimas's group in Miami (sounds like they are not taking new patients for now) Dr Dan Peterson in Incline Village (Nevada), Dr Sue Levine and Derek Enlander, both have separate practices in New York City.
     
    Last edited: Jun 22, 2015
    SOC likes this.
  16. sillysocks84

    sillysocks84 Senior Member

    Messages:
    445
    Likes:
    346
    Thank you so much @ Kati! I love in Missouri, so I would have to make a trip out of it. I will figure it out somehow. I need help badly. I just can't express enough what it means that you took your time to find and share that information with me! Thank God for this site. If we all work together maybe we can get somewhere. Have you been doing well lately?
     
    Kati likes this.
  17. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,614
    Likes:
    12,447
    South Australia
    I regained the ability to walk (had severe lower leg muscle weakness), over a few months, but have not been fully well for many years since.

    I haven't found anything specific that works so far.
     
  18. Violeta

    Violeta Senior Member

    Messages:
    1,632
    Likes:
    962
    Have you heard yet of CEASE therapy for relief from vaccine injury? I would look for something like that. Homeopathy may be the only hope for a way out of it. You are fortunate to have had such a quick reaction so that you realize what caused your problems, most of us here aren't that fortunate. Who knows how many of us have part of the cause of our problems from the vaccines we received even as a child.

    Here's a link to one CEASE therapist, I don't know anything about her, I would look for reviews.

    https://vaccinefree.wordpress.com/vaccine-injury-homeopathic-detox-mn-cease/

    I can also get in touch with someone who has done homeopathic remedies for illness caused by vaccines and see if she knows anyone to recommend or if there is a better program than CEASE.
     
    jepps, Wayne and sillysocks84 like this.
  19. Kati

    Kati Patient in training

    Messages:
    5,466
    Likes:
    19,595
    Hi @sillysocks84 I was fortunate enough to see 2 of the mentioned specialists. Getting validation is a very, very good thing.

    Edit to add: by carefully planning my travelling arrangements, it was possible for me to go from one corner of the continent to the other corner though I later on chose a physician which was closer ((90 minutes by plane) to me. Here is what helped me : getting a wheelchair service at the airport. Hotel with room service. Picking an airline which offers non-stop direct service (hopefully a discount airline), renting an oxygen concentrator for the flight, no red-eye flights, compression stockings especially for long flights.

    Best wishes.
     
    Last edited: Jun 23, 2015
    SOC, sillysocks84 and rosie26 like this.
  20. Violeta

    Violeta Senior Member

    Messages:
    1,632
    Likes:
    962
    With ME doctors spread throughout the states, many people here must have visited them. I am looking through old messages to see what type of treatment they provide and how it goes for those who visit them.

    @Kati, which two of those doctors did you visit, what was your diagnosis, and what is your treatment plan?

    Thank you
     
    sillysocks84 likes this.

See more popular forum discussions.

Share This Page