1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
Discuss the article on the Forums.

CFS ME FM and Flu Shot

Discussion in 'General Treatment' started by roxie60, Oct 26, 2012.

  1. roxie60

    roxie60 Senior Member

    Messages:
    1,594
    Likes:
    466
    Central Illinois, USA
    I am feeling really bad lately but still at work. Company is giving out flu shots. I have taken it in the past but I feel really ill and unconfortable but afraid to not take it and be exposed to all the germies around work. What is your experience taking a flu shot with CFS / FM symps? Just looking for opinions. Thx
  2. Rooney

    Rooney

    Messages:
    75
    Likes:
    19
    SE USA
    I wouldn't if you're already sick. Avoid a "live" vaccine. Or wait until you're better.
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,419
    Likes:
    5,169
    Albuquerque
    I had a really bad reaction--even to the "not live" vaccine. I will never take it again. There are also big questions about how much the vaccine will protect you as they formulate the vaccines before the current flu system hits. From what I have read, they have to guess a bit about how to formulate it.

    Sushi
  4. Tammy

    Tammy Senior Member

    Messages:
    323
    Likes:
    252
    New Mexico
    IMHO................I wouldn't get the flu shot.
  5. roxie60

    roxie60 Senior Member

    Messages:
    1,594
    Likes:
    466
    Central Illinois, USA
    I've decided to wait a week and see if I feel better, just way too many symps dont want to pile more 'uncomfortableness (is this a word ;-) on me poor bod
  6. Rand56

    Rand56 Senior Member

    Messages:
    488
    Likes:
    173
    Myrtle Beach, SC
    I avoid flu shots like the plague. It's probably been over 30 years ago the last time I got a flu shot.
  7. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,419
    Likes:
    5,169
    Albuquerque
    Roxy,

    I don't know about the others who have reported bad reactions to flu shots but for me, it wasn't "uncomfortableness," it was more like "Should I call 911!"

    Sushi
  8. silicon

    silicon Senior Member

    Messages:
    148
    Likes:
    72
    I'd rather have the plague than a flu shot!
  9. Rand56

    Rand56 Senior Member

    Messages:
    488
    Likes:
    173
    Myrtle Beach, SC
    LOL good one silicon!!
  10. JT1024

    JT1024 Senior Member

    Messages:
    534
    Likes:
    286
    Massachusetts
    WillowJ and ggingues like this.
  11. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    3,917
    Likes:
    783
    Concord, NH
    I wouldn't get it, I used to before coming down with CFIDS (thought it was the smart thing to do, but this illness teaches you many things, and I did have a stretch of the flu very badly for a week). I remember one winter coming home and crashing all night. I changed jobs and moved across the state and mentioned this to on my fellow co-workers and they said they experienced the same thing.

    I don't feel that much worse when I get sick, so why bother?

    I also keep my Vitamin D levels high and take lots of Vitamin C, some Drs take mega doses (via IV) of these when they feel something coming on, and it supposed to reduce the time and severity, if I recall correctly.

    GG

    PS I thought I used to eat healthy, but I ate some crappy stuff, much more aware now!
  12. barbc56

    barbc56 Senior Member

    Messages:
    1,286
    Likes:
    659
    I get the flu shot every year and am about ready to get it plus the shingles vaccine. My doctor wants me to get the shots because of my my diagnosis with me/cfs/fm and the possible impact of actually getting the flu, especially since we crash so easily.

    The bad effects of vaccines are really overhyped IMHO. I'm not saying they don't happen. I would suggest if someone is worried about getting a vaccine, see an immunologist and get his/her opinion as there are medical conditions where you shouldn'tt get vaccines but these are very very rare.

    You should bother because you may be contagious to others who may be in a higher risk group.
    It's obviously a matter or personal choice if you chose not to get vaccinated but you have to weigh the risks with the benefits, to yourself as well as others.

    No, I am not interested in debating the merits of vaccination. I am just showing another perspective.

    Barb C.:>)
  13. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    3,917
    Likes:
    783
    Concord, NH
    I have heard one person I respect say the shingles shot is good to get, not worried about that at this point and time, I'm not that old, I will research it more at some further date.

    I am not buying the herd immunity thing, if that's the case, then a few outliers should not affect anything, right? When the "swine" flu was Big News, I asked one of my Drs who had small children and a pregnant wife, he basically told me that No One in his family was getting the shot, and to take my advice from that!

    GG
  14. Valentijn

    Valentijn Activity Level: 3

    Messages:
    5,899
    Likes:
    7,989
    Amersfoort, Netherlands
    If you do get it, you could try to get a version without all the nasty preservatives that we might have trouble detoxing. Of course, you probably couldn't get that option at work :p
  15. roxie60

    roxie60 Senior Member

    Messages:
    1,594
    Likes:
    466
    Central Illinois, USA
    All great responses, thanks for sharing all the views. We have so much to consider with CFIDS/ME/FM.
  16. Snow Leopard

    Snow Leopard Senior Member

    Messages:
    2,221
    Likes:
    1,573
    Australia
    That's what I thought until I developed ME straight after a vaccination (initially Guillain Barre Syndrome was suspected, but ruled out).

    I'm not saying anyone in this thread will have a reaction/relapse to the flut vaccination, but to simply be aware that viruses and 'live' vaccines are the most common triggers for this illness.
    WillowJ and ggingues like this.
  17. roxie60

    roxie60 Senior Member

    Messages:
    1,594
    Likes:
    466
    Central Illinois, USA
    I was told the vaccines are made from dead viruses but I have become a rather untrusting person when it comes to the medical feild.
  18. Snow Leopard

    Snow Leopard Senior Member

    Messages:
    2,221
    Likes:
    1,573
    Australia
    There are a few different types.

    The intranasal vaccination uses live 'attenuated' virus.
    There are two types of shots, virus which has been incubated in embryonated avian eggs, and then chemically treated to 'inactivate' the virus. These are not supposed to be able to replicate (up for debate, depends on whether the entirety virus cells are in fact 'inactivated'), but induce immunity to a complete viral capsid with surface proteins.
    There are also shots based on isolated surface proteins, in the absence of a viral capsid.

    All of them will promote an immune response (which is the whole point), but one of the problems in ME or CFS is that the immune response can be atypical, leading to increased inflammation.
    roxie60 likes this.
  19. SOC

    SOC Moderator and Senior Member

    Messages:
    5,153
    Likes:
    5,974
    USA
    I had the flu shot this year. I'm exposed enough that when I don't get the vaccine, I get the full-blown flu which is worse. I definitely avoid the live 'attenuated' virus vaccine.

    This works for me, but it doesn't for everyone. I have had moderate setbacks in the past from flu vaccines, but nothing intolerable. That's not a guarantee with ME/CFS. This year, now that I'm much improved and able to work part time, I had a very small reaction -- a little achy and tired for a couple of days. I took it on a Friday and slept more over the weekend than usual.

    I think the recommendations from Dr Lapp (seen at link in post #10) makes good sense. The only thing I'd add is that if you're going to rely on antivirals to help if you get the flu, make sure in advance that you have a doc who will cooperate. Most won't give you antivirals if it's "just the flu".
  20. xks201

    xks201 Senior Member

    Messages:
    606
    Likes:
    180
    I just got it and now I'm sick with flu like symptoms. Happens everytime I get it. And I never get the flu otherwise.

See more popular forum discussions.

Share This Page