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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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CFS/ME as a Liver issue

Discussion in 'Alternative Therapies' started by undcvr, Aug 5, 2012.

  1. tyson oberle

    tyson oberle

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    tampa, florida
    undcvr
    Did you do a pyroluria test?
  2. undcvr

    undcvr Senior Member

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    NYC
    CFS is a paleo diet and absolutely no gluten or dairy
    CFS is depression (Lithium, Methylfolate, NAC)
    CFS is fatigue (B9 methylfolate, mb12, B6(P5P), B3(NADH), NAC)
    CFS is pyroluria B6(P5P) 300-400mg. Zinc 300-400mg
    CFS is methylation B9 methylfolate 60mg, Sam-e
    CFS is a weak malfunctioning immune system/ autoimmune/inflammation (NAC, Vit D, DHEA, Omega 3s, Curcumin, GLA,)
    CFS is a weak liver detox (B vites, Artichoke, Pectin, Bioflavonoids, Fiber, NAC)
    CFS is also a fast liver phase 1 and slow liver phase 2 detox 'weak liver' ( bioflavanoids esp naringinin, Grapefruit, D-Limolene)

    The fatigue comes from: low methylation, toxic metabolites from a fast liver phase 1 and autoimmune flare ups from n over reactive/weak immune system
    merylg likes this.
  3. tatt

    tatt

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    have just found this when searching the site for information on liver dysfunction. I have recently had a fibroscan. It was not conclusive but suggests a liver problem. My blood tests have never shown any issues. I would suggest anyone who can afford it gets a fibroscan.

    For those who cant afford it my health has been improving since starting to take N-acetyly cysteine. I have recently added ATP and have enough energy to do some muscle building exercise. I also recommend checking for vitamin D deficiency and consider phosphylatyl serine. The alert may notice the similarities between this and the methylation protocol.
  4. Snowdrop

    Snowdrop Senior Member

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    Toronto
    There are a variety of threads with different protocol ideas they all seem to have some merit.

    Since some people seem to respond to supplements I get to thinking when I read these threads. Is it not only that we have different symptom groups but also it's the where we are at in the disease cycle that matters as to what helps or not?

    I'm thinking of supplements here. While they're not a cure they do seem to help some people.

    I mention this because it would be helpful to know for example, the people who had similar liver function results, how long had they been sick?

    Maybe it's not as meaningful as I imagine it might be, but I do wonder.
  5. Research 1st

    Research 1st

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    Indeed, as CFS can be anything.

    This this is the fundamental error in the CDC creating and utilizing CFS as a diagnosis with no test to confirm it is even there because even if it 'it' is, then what is 'it'? :)

    Your reasons are all accurate, however they can be found to be null in research studies because of the Fukuda CFS criteria. The same goes for pathogen studies also. No conclusive cause can be found for CFS, by default, as long as the diagnostic criteria remain as they are.

    Consequently patients with the reasons you list above, are never known to have these ailments and sadly remain ill for decades or forever.
  6. Radio

    Radio *****

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    The Liver Connection
    http://forums.phoenixrising.me/index.php?threads/the-liver-connection.28937/
  7. tatt

    tatt

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