CFS/ME as a Liver issue

[Old Salt]

Ten years ago they found a lot of Hemangiomas on my liver. They said it isn't all that uncommon. Have no idea what causes them. They said.
I get checked again next month.

 

[undcvr]

wtf r those ?!?! Crazy ! Self-Involuting ! lol

 

[Little Bluestem]

The normal liver enzyme test for AST (SGOT) and ALT (SGPT) don't apply here bc they only spill out of the liver into the bloodstream when the liver is damaged or injured. Our livers are Not damaged or injured, it is more subtle than that, they are malfunctioning.

If you give it enough time, your liver may become damaged in the traditional sense. My ALT enzymes are high.

 

[undcvr]

I don't understand this. If you give Anything enuf time Anything can get damaged. If your ALT is high that is probably due to a more common reason like medication. AST/ALT usually spike for awhile anyway when something new is introduced to the body and the liver adjusts to it. But there are like other 400 enzymes besides those 2 that the liver makes. Some just exist for a few seconds, do their job and then disappear.

 

[xks201]

I think it is a gut issue causing a liver issue. There is a huge metabolic burden involved with detoxing metabolic waste of pathogenic bacteria.

 

[alex3619]

Hemangiomas are uncontrolled but not cancerous blood vessel growth. I had one cut out of my earlobe several years ago. They are sometimes considered indicators of lymphoma risk, so its worth discussing health monitoring with your doctor. Bye, Alex

 

[mellster]

When I was ill I had liver enzymes measured once and I think it was ALT/AST or ALP. The ref range was from like 0 to 15 if I remember correctly or maybe 2 at the low end, whatever the unit of measure was. I came out close to zero and the doc said it's fine it's got nothing to do, esp. since I had given up alcohol. They only worry about high results. Looking back, could this have indicated a sluggish liver, esp. since I was alcohol intolerant during that time which is now almost reversed. I like some of undrcvrs theories as he also mentioned reduced sweating (even when feeling hot) at some point, and I had that as well. Now I am mostly back to sweating like a pig when exercising and my tolerance is much much better if not completely restored.

 

[SickOfSickness]

Of all the citrus fruits I have read, only grapefruit and bergamote, slow dwn phase 1, the rest speed up phase 2. Also it is not just the juice or the pulp that you have to eat, it is the whole fruit. Much of the active ingredients are in the rind/peel and whites of the fruit.

Interesting. Sometimes I eat 2, 3, or more whole grapefruit in a day. I never eat the peel. Maybe I should.

If you eat the peel, you're supposed to get organic because the peel is where the pesticide residue is.

Sometimes I eat a lot of other fruit that contains Vitamin C. Is it okay for me to eat a lot at once, or in a day? I don't know anything about my phases. Would it be bad if my phase 2 is normal and I speed it up by eating these?

Yea it is a strange situation when taking GSE would supposedly make the situation better only makes it worse. In liver detox Gluthathione works in phase 2 but it does many other things in the body as well as a general antioxidant. Do you feel any different if you increase your B rite dosage everyday ?

I read so many good things about GSE so I bought some, but then I read about GSE having too many chemicals in it. It's supposed to be all natural, but they use some kind of chemical process to make it, and the chemical gets in the GSE. I can't remember more to explain it better but it is discussed on many sites.

 

[Lee Ann]

Coffee enemas are suppose to cleanse the liver. The book " Healing the Gearson Way" explains how it is done. I'm sure you can get the info on line.

 

[undcvr]

Has anyone tried taking high doses of B6 (P5P form) and high doses of Zn on the off chance that your CFS might be pyrolunia based. I have done it on and off and I find that it helps.

 

[Uno]

If you have pylorina you need to see a liver specalist right away. I have PSC. My ALT is over 250.

 

[merylg]

If you have pylorina you need to see a liver specalist right away. I have PSC. My ALT is over 250.

Hi Uno,
How did they diagnose PSC, if you don't mind sharing?

 

[undcvr]

What is PSC ?

 

[xks201]

so the zinc/b6 didn't cure the CFS?

 

[Vincent]

I'm not familiar with the stage 1 or stage 2 business but I do know my dr has told me my liver enzymes are 'slightly elevated' and I do have non-alcoholic fatty liver disease. Keep in mind I drink a 6 pack of beer per year, and I don't do drugs. This must be because of the various psyche drugs I have been on over the years.

I don't believe the dr's when they tell me this is 'normal'. It was probably the depakote and or the lamictal that I was on for years.

 

[Uno]

Hi, sorry I haven't replied in a while. Primary Sclerosing Cholangitis is a disease of the bile ducts where the biliary tract gets blocked and the bile gets infected, which causes eventually liver cirrosis.

Meryl - I've been to hell and back with sepsis, infections, vomiting blood and agonising pains. White count over 25, liver enzymes raised. The doctors were just clueless, they thought it was an infected gallbladder so they removed it but have been very sick, I had a life threatening infection after surgery.

I've had endoscopic ultrasounds but based on the fact my mum also has PSC and the symptoms they just said its PSC and I need to be under a specialist hospital - still waiting (this was in July). They said it's my immune system attacking the body causing sclerosing cholangitis.

 

[undcvr]

If you have pylorina you need to see a liver specalist right away. I have PSC. My ALT is over 250.

Nope my liver enzymes are fine. I just got my test results back. I am deficient in Zinc though which is scary cos I already take 30-50 mg of elemental Zinc daily.

 

[Little Bluestem]

Did you read the posts by former member Dog Person?

 

[merylg]

Lately I have been thinking about Primary Biliary Cirrhosis. Seems it is an insidious autoimmune condition. Things I have found interesting are the role of T- cells in epithelial destruction, the possible role of a....retrovirus and possible molecular mimicry targeting mitochondria in epithelial cells (but stimulated by bacterial infection eg from a Urinary Tract Infection). This site is interesting:

http://www.medicinenet.com/primary_biliary_cirrhosis/article.htm

 

[undcvr]

I've gone back to work full time and am able to excercise in the evenings when I am free. Wish me luck. This is still in the experimental phase but I have been able to maintain my fatigue-free status as long as I keep taking my supplements. Now and then other symptoms still flare up and I am able to spot treat them, all the while maintaining my high supplement status. This time my recovery feels much more complete, I feel even better than when I was on the Valcyte. I always felt that something was missing on the Valcyte. I take high doses of Zinc, B6 (P5P), B3 and Kelp (iodine) daily.