1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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CFS Kids and School

Discussion in 'General ME/CFS News' started by starryeyes, Nov 6, 2009.

  1. starryeyes

    starryeyes Senior Member

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    Dr. David Bell testified at the CFSAC on Day 1 and he stated that when the school calls because a CFS student has missed 4 months of school, the child's primary care physician should talk to the school and say,

    "This child has CFS. S/he fits all of the necessary criteria which are stated in the CDC's Fakuda definition as well as the Canadian Definition for CFS. This child is not faking it."

    That doesn't take very long and it will save parents the hassle and trauma of having to go to court to "prove" their child is truly physically sick and disabled which is very difficult to do because the CDC has made CFS sound like a malingerer's disease in their PR of CFS. Parents are still losing custody of children who have CFS today. The longest a family with a child who has CFS has been tied up in the courts in the U.S. has been 10 years.



    Dr. David Bell is speaking about this at 5:45:15 on Day 1 of the CFSAC.

    "Dr. Bell is the author or co-author of numerous scientific papers on CFS, and, in 2003 was named Chairman of the Advisory Committee for Chronic Fatigue Syndrome of the Department of Health and Human Services. Publications include A Disease of A Thousand Names, (1988) and The Doctors Guide to Chronic Fatigue Syndrome, (1990). A comprehensive review of CFS is currently being written and is hoped to be published in 2005.

    Dr. Bell currently practices general medicine in Lyndonville, New York with his wife Nancy, a family nurse practitioner. Roughly half of the patients seen in the practice suffer from chronic fatigue syndrome, fibromyalgia, orthostatic intolerance, and/or myalgic encephalomyelitis."

    Dr. Bell is also currently seeing the same 60 patients he originally saw in the early 1980s who have CFS. He was just about to retire when XMRV was discovered. Now he is asking to see any of his former patients.

    The Link for Dr. Bell's e-newsletter: http://www.davidsbell.com/DSBAbout.htm
     

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