1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Ergonomics and ME/CFS: Have You Hurt Yourself Without Knowing It?
Having a chronic illness like ME/CFS can make it hard to avoid problems that come from bad ergonomics. Jody Smith has learned some lessons the hard way ...
Discuss the article on the Forums.

CFS documentary

Discussion in 'Advocacy Projects' started by JenB, Feb 5, 2013.

  1. JenB

    JenB

    Messages:
    18
    Likes:
    16
    I am starting research for a documentary film on ME/CFS. I'm looking for a few PWC's and/or their families to participate.

    I have CFS, and have been documenting my experience with video for many months. I would like to incorporate the stories of several other PWCs.

    If you think you have a story to share, and are interested in telling it, PM me for more details. And if you happen to know anyone who works professionally in film (in any capacity), and may have a passion for ME/CFS or health in general, drop me a line!
    Xandoff, Sing, anna8 and 4 others like this.
  2. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,036
    Likes:
    882
    Concord, NH
    where abouts are you located?

    GG
    Dolphin and justy like this.
  3. loayachil

    loayachil

    Messages:
    59
    Likes:
    23
    New York
    I know a Lyme advocacy group created a documentary called Under Our Skin that was done professionally. (The producer's sister was diagnosed with Lyme).
    Maybe check who shot it for them and use the same group.

    Good luck as this could be very useful
    Lo
    taniaaust1 likes this.
  4. JenB

    JenB

    Messages:
    18
    Likes:
    16
    I'm near New York.
  5. JenB

    JenB

    Messages:
    18
    Likes:
    16
    Thanks for the suggestion. I think it's a great idea to contact the folks involved with Under Our Skin.
    Xandoff likes this.
  6. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

    Messages:
    2,490
    Likes:
    1,175
    NYC (& RI)
    Under Our Skin was a great movie. We need our own version of it, for sure. I was so bummed when What About ME? got cancelled.

    Of course, they are costly to produce at that level. I was filmed a couple of days ago for a doc on the psych DSM-5, called A Dangerous Man. I tried my best to convey the problems with the new Somatic Symptom Disorder for pwME and the public in general. In any event, the producer said that he projected the documentary would cost $500k, which is not financed by a studio (until and if it is bought by a studio).

    Who knows though, maybe the Under Our Skin folks would be sympathetic to us because of their similar situation with Lyme. I didn't know the producer had a sister w Lyme.

    I am in ny. I will pm you.
    Xandoff, Sing and ukxmrv like this.
  7. LaurelW

    LaurelW Senior Member

    Messages:
    552
    Likes:
    92
    Utah
    What about ME got cancelled?? Noooooo!
  8. Sing

    Sing Senior Member

    Messages:
    1,302
    Likes:
    422
    New England
    Nowadays the public needs a film or a TV special or interview in order to find out what is going on. People don't read print, or it doesn't sink in, as much. So I hope this film can be made--even if low budget--and maybe it will go far, or if not, be a stepping stone to another film, TV special or interview which will. I do feel we need more public pressure....
  9. Old Salt

    Old Salt Rowing the boat

    Messages:
    70
    Likes:
    19
    S/W Pa.
    Lacking any difinitive test, how can you say CFS/ME isn't Lyme?
    golden likes this.

See more popular forum discussions.

Share This Page