Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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CFS doctor in Germany or Czech republic

Discussion in 'ME/CFS Doctors' started by pepous, Aug 19, 2015.

  1. pepous

    pepous

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    Hello,

    do you have any tip to a good CFS doctor in Germany or Czech rep. where I live?

    Thank you very much - I am really very tired :)
     
  2. Daffodil

    Daffodil Senior Member

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    Dr. Kenny DeMeirleir in Belgium would be your best option, I think.
     
    Valentijn and xrunner like this.
  3. PNWMom

    PNWMom

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    My daughter did some preliminary diagnostics with this doc when we lived in Munich:

    http://dr-bieger.de/impressum/

    We moved back to the US before he could initiate any treatment protocols, but I was impressed with how comprehensive his testing was (and expensive). I have no idea what it would be like to be a long term patient of his, but it may be worth looking into if you need someone closer than Belgium (and Dr DeMeirleir can have a long wait list). My daughter now sees Lucinda Bateman and she utilized the labs that Dr Bieger ordered for her diagnostic process.

    I have heard that Charite in Berlin has an ME/CFS clinic but it is supposedly very difficult to get into. Dr Carmen Scheibenbogen is a name that pops up from time to time in CFS EU research circles. I don't know anyone who has been seen at Charite but it does have a CFS program.

    http://immunologie.charite.de/en/pa...tpatient_department/chronic_fatigue_syndrome/
     
  4. maryb

    maryb iherb code TAK122

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    BCA have also opened a new clinic in the Czech republic not sure where, maybe if you e-mail the main clinic in Augsburg> Its new so maybe get an appt sooner.
     
  5. TiredSam

    TiredSam The wise nematode hibernates

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    Germany
    Currently 9 month waiting list (might be shorter for private patients), recently changed their policy so they only accept patients who have done a load of exclusionary tests with their local doctor, eg blood, cardio, gastro, psycho etc. You can print out the list from their website, then you have to go through it all with your local doctor.
     
  6. Uno

    Uno Senior Member

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    Brighton, United Kingdom
    I am going to see Dr Biegler. I will feed back.
     
  7. pepous

    pepous

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    Hello,

    you mean this ? http://www.bcl-clinic.cz/en/kontakt.html
     
  8. pepous

    pepous

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    And please do you know of anyone who will be willing to do just online consultations? I have good payed doctor in Czech (Klubal is his name) which will get the testing needed from suggestions from other doctors if needed.

    Thank you.
     
  9. Vojta

    Vojta Senior Member

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    Czech Republic
    Hi,
    I'm czech too so I can give you all information I have (I've been sick 6 years). Dr. Klubal is also my immunologist and I have been patient of prof. De Meirleir in Brussels and I visit BCL clinic because I live nearby.

    We can speak czech in private messages (just click icon of user and then Start a conversation) or I can message you if you can't find find.
     
  10. BurnA

    BurnA Senior Member

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    I could probably post this message on many threads but I'll start here.
    I know we all want the best treatment but sometimes I wonder about the benefit in going to see a ME /CFS specialist ( especially if they are so expensive).
    Is there really anything they can do for you ?
    Do many patients who visit such specialists get a noticeable improvement based on the treatments they provide ?
    Do they just perform lots of tests ?
    Thanks.
     
  11. maryb

    maryb iherb code TAK122

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  12. pepous

    pepous

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    You mean bcl-clinic.cz?
     
  13. maryb

    maryb iherb code TAK122

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    Yes
     
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  14. eletem

    eletem

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    Hi, please ,can you recall his prices more or less? Ideal place for us,but I don't know if we can afford.Thanks.
     
    Last edited by a moderator: Mar 15, 2016
  15. PNWMom

    PNWMom

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    It has been two years since my daughter saw Dr Bieger; I have no idea what he is charging now. As a private doctor, I believe his initial consultation is several hundred euro. He is very good about answering emails. If you have concerns or need exact costs, send him an email and ask him about his current fees. Two or three hundred euro for a multi-hour consultation is about what I paid to see other private doctors in Munich.

    The labs were very expensive--several thousand euros--but not as much as DeMeirler was charging at the time. I recall that DeMeirler's labs ran around 5000 euros or more. We didn't start treatment with Dr Bieger so I can't say what that would cost.

    I hope this is helpful! Dr Bieger's report was incredibly valuable. It was about 12-15 pages long and provided a lot of analysis and detail about interpreting lab results. If you can only afford to see him to get this information, I would recommend it. His analysis would be useful for any doctor that may be treating you.
     
  16. eletem

    eletem

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    Thank you very much for your reply! I'm new on the forum , I understood just yesterday that my 13-year-old-son debeloped cfr after being vaccined hepatitis b while having mono.I've recently posted about our case, but I don't know if it is public as I still can't use the system.I'm more than scared.Will you write some sentences about your daugter's case or can I find your post about it? How is she now?Thanx again!
     
  17. PNWMom

    PNWMom

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    Might I suggest that you join the Facebook group, Parents of Kids & Teens with ME/CFS and Related Illnesses? There are a lot of parents there from around the world that have so many wonderful ideas and help. You sound like you need the support. They are all so kind. The moderator is Sue Jackson.

    My daughter became ill at 17. She had had several serious viral infections including mono. She has had problems with her immune system always. It is possible a vaccine contributed to her problem but we can't say for sure. Her official diagnosis is "Chronic Fatigue Immune Deficiency Syndrome," dysautonomia, and autonomic neuropathy. Her case has become quite severe and she is being treated by several specialists. She was diagnosed 2 years ago.

    Good luck! I hope you can join the Facebook group. :)
     
  18. eletem

    eletem

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    Thank you again! I have joined it.As soon as I am admitted I will share my story as for some reasons I still can't use the Phoenix well. Is it so dangerous to catch other virusis or bacterias while having mono? My son has just got streps from me.:-( Is that dangerous ,too? Thank you again.
     

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