The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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CFS Blogger Has Column on the Huffington Post

Discussion in 'General ME/CFS News' started by Cort, Mar 1, 2011.

  1. Cort

    Cort Phoenix Rising Founder

    CFS Blogger Shows Up on the Biggest Blog Platform of All: the Huffington Post

    John Falk is a journalist and former war correspondent who came down with ME/CFS a couple of years ago during an overseas trip. He's been out of commission for a couple of years and has now shown up at the Huffington Post writing openly about CFS. (A CFS blogger on the Huffington Post? - Another sign that the CFS is 'making it' as a mainstream media item).

    http://www.huffingtonpost.com/john-falk/chronic-fatigue-syndrome-_b_829651.html

    He's very descriptive - check out this

    He notes how ME/CFS is categorized by a sloppy medical profession

    He's very honest as well. Psychotherapy or CBT's connection to CFS is the story of the day right now and he confronts that aspect straight on.

    And he's tried. He's tried hard and because that I think he is a superb bridge for us to the public and the medical world. This is not someone who rejected whatever opportunities therapy presented - he's given it a go...and it hasn't worked out.

    Instead the best therapy he's gotten is to get in touch with people who understand where he's at.

    Check out his blog and lets get him some traffic on the Huffington Post. This is the first post on the Huffington Posts Health section...the only its and its future blog posts are going to stay there is if we flood those posts with comments. :thumbsup:

    http://www.huffingtonpost.com/john-falk/chronic-fatigue-syndrome-_b_829651.html

    Signing into Huff Post is a little confusing. I did it using my Facebook site and then had to input my email address on the right as well. You can also use the Share button on the top of the article to share the article with your Facebook site, blog, twitter, etc. ;)
     
  2. glenp

    glenp "and this too shall pass"

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    Vancouver Canada suburbs
    I did a quick reply
     
  3. WillowJ

    WillowJ คภภเє ɠรค๓թєl

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    WA, USA
    kudos to John Falk for sharing his story. He did a good job! The commenters added some important content. Thanks for finding this and sharing the link, Cort.
     
  4. illsince1977

    illsince1977 A shadow of my former self

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    I think he missed the essnce of what CBT as I understood it is - convincing PWCs they are not ill, but are instead making a big deal out of nothing - is that correct?, which someone pointed out in a comment. Other than that it was good to see someone "coming out of the closet" with CFS. It's a very apt parallel.
     
  5. In Vitro Infidelium

    In Vitro Infidelium Guest

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    CBT is just a systematised approach within a 'therapy' context, to encourage better/more/alternative activity/behaviour within the patients overall lifestyle. How it is applied and the objectives that are set, is down to the therapist/institution. CBT is really little more than the formalisation of good practice delivered informally by Physiotherapists around the world. A key part of all the published CBT studies is that the therapy is based on a negotiated process between therapist and patient, clearly where this breaks down and the patient is (or at least feels) disempowered, and in the case of M.E, forced to do more than is healthy, the results will be harmful.

    We shouldn't pretend that deconditioning is not an issue, even if Wessley, White and others have grossly overstated the role of deconditioning. Some M.E/CFS sufferers will benefit from CBT and GET if those therapies are delivered by informed therapists who are sensitive to the requirements of people with M.E/CFS. Making simple treatments like CBT and GET no go areas behind barricades that have to be defended with energy and propaganda, is a drain on our limited resources - establishing good practice and relevant prescribing rules (CBT and/or GET is not for everyone) is the pragmatic way forward.

    There is never going to be a magic bullet for everyone with M.E, even using the Canadian Criteria the patient population will include multiple disease causations, and the development of treatments, even those with limited application and only small lifestyle gains needs to go hand in hand with research into causation. Going to war with one section or another of the medical profession may 'feel good' but it is not 'smart'.

    IVI
     

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