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CFS and Rheumatoid arthritis

Discussion in 'Pain and Inflammation' started by Cindi, Feb 12, 2014.

  1. Cindi

    Cindi Senior Member

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    Anyone have both together?
  2. Martial

    Martial Senior Member

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    Ventura, CA
    Have you ever been tested for lyme disease?

    That could cause symptoms indistinguishable from chronic fatigue syndrome especially with co infection. Obviously Lyme is notorious for athritis as well..

    Did they find specific anti bodies in your blood for the arthritis or was it based on symptoms?

    If I were you I would get a test through IgeneX labs and eliminate it as a possibility.. Here is a link to the site.. http://www.igenex.com/Website/

    The reason you want to be sure is that the treatment of steroids and immune suppresent drugs fo auto immune disease is the last thing you want with a chronic body wide spread bacterial infection.
    merylg and Cindi like this.
  3. Nielk

    Nielk

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    i have been sufering from ME/CFS for 11 years and was just diagnosed with RA this past week.
  4. Cindi

    Cindi Senior Member

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    Is your RA aggresive one?Mine was. All joints were effected and i was brought to hospital via wheel chair.Do you think RA has any relationship with your CFS. I am thinking leaky gut might have caused it.Which medications were you prescribed? I was prescribed cortisone,methotraxate and plequenil. I am already on natural adrenal cortex extracts and i did not start the remaining medication. trying to solve by natural means. I am sensitive to medications and scared to start them. Hope you get well soon.
  5. Sherlock

    Sherlock bicarb for exercise recovery and taming candida

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    I've just had a month where I could hardly use my hands because of joint inflammation and tendon weakness (not RA though). After endless hours of wondering what was causing it, my (current) theory is also leaky gut - maybe from post-exercise sugar and then a candida flare.
    Last edited: Apr 25, 2014
  6. Aileen

    Aileen Senior Member

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    Those of you who are thinking your RA might have a connection to leaky gut should look into probiotics. I have just started this line of research, and have seen RA come up in the probiotics research. Don't have any links to articles I've read though.

    Am trying out Align, a brand of bifido infantis at the moment. This strain has been used in a trial involving cfs patients and was shown to effect some inflammatory cytokine levels. A quick check on PubMed gives a list showing papers on arthritis and various probiotics (here) I didn't read them but some look interesting.
    Sherlock likes this.
  7. Sherlock

    Sherlock bicarb for exercise recovery and taming candida

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    Thank you, Aileen. At first look, I'd thought the aim of using probiotics was to repair leaky gut, but your links led me to an April 2014 review which says instead:
    https://www.ncbi.nlm.nih.gov/pubmed/24256057
    The immunomodulatory effect of probiotics beyond atopy: an update.
  8. Sherlock

    Sherlock bicarb for exercise recovery and taming candida

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    From @Aileen's lead, I got to this:
    The role of the microbiome in rheumatic diseases.
    https://www.ncbi.nlm.nih.gov/pubmed/23378145
    which seems to get back to leaky gut.

    For the end "trafficking of both activated immune cells and antigenic material to the joints", that seems to (or could) refer to molecules that would not have gotten into the circulation except for increased gut permeability. I've read that papain and bromelain are recommended to break down the immune complexes (antibodies bound to antigens) that collect in the joints. Maybe that's worth a try one day.

    In my own particular case, inflammatory problems include painful joints which are also easily injured and which become swollen if I keep using them, but also muscle effects: I get muscle tear injuries from very light stressing such as holding a phone (set on speaker phone) in front of me. Days later, the muscles are able to handle much much heavier weight and the joints are getting back to normal. Am I wrong in thinking that these rapid and dramatic changes are not characteristic of RA?
    Last edited: Apr 25, 2014
  9. bertie7

    bertie7

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    I have had CFS for 27 years and was also diagnosed with RA, I have started LDN which is supposed to help. I am on 5mg for the past 12 days. I will keep you posted if I find relief.
    Cindi likes this.
  10. Cindi

    Cindi Senior Member

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    yes,Please do post. Thanks :)
  11. Cindi

    Cindi Senior Member

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    have you been checked by rheumatologist?
  12. jann1033

    jann1033 Senior Member

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    Just wondering if bertie7 or niekl had been tested with negative results in the past?

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