I think the survey was interesting; post-exertional malaise (despite the CDC's attempt to bury it) was right on top followed by sleep problems and muscle pain. I was a bit surprised by muscle pain - its not, I don't believe, one of the CDC's core symptoms in the 1994 definition -but its definitely one of my top symptoms and always has been. Interestingly post exertional problems decreased a bit over time; not a huge amount - they were still way up there - but they weren't the top. I think that can only be due to people slowly learning how to manage their illness. The survey could have been more comprehensive; nothing on problems standing, increased heart rate, heat intolerance, chemical sensitivities, libido...???? but it was interesting. http://www.cfids.org/cfidslink/2009/090202.asp Unfortunately I couldn't get the graphs in there - they were quite good. The average duration of this illness for people over 55 was 20 years! ____________________________________________________________________________ Support validating CFS research with your gift to the CFIDS Association of America. Donate now!