Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Cerebral atrophy

Discussion in 'Neurological/Neuro-sensory' started by Vickytoria1988, Jul 23, 2017.

  1. Vickytoria1988

    Vickytoria1988

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    GREECE
    Hi all,

    Did recently an MRI and the doctors found I have prefrontal celebral atrophy.

    3 neurologists checked the MRI and said that this is not an important finding. Many people have it with no symptoms, they said.

    They also said that it does not relate to my headaches (but admitted that this is not normal for a 29 year old). Of course the bunch of my symptoms were phychosomatic (!) and CFS does not exist for them.

    I did some google search and found an article that many CFS patients are found with celebral atrophy and another one that says that celebral atrophy can be caused by severe pain.

    What s your insight on that? Does anybody have this?
     
    pattismith likes this.
  2. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    Anyone with cerebral atrophy?
     
  3. cfs6691

    cfs6691

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    I discovered a few months ago that i have celebral atrophy in the cortical and cerebellar areas.I am 50 years old and I have had CFS since 1991.I also have headaches.In the past few years I have been experiencing a lot of pressure in an area in the right hemisphere of the brain and difficulty in concentrating sometimes even in cooking a recipe that I had cooked plenty of times in the past and in reading and learning new Information.I used to have a passion for learning foreign languages and I felt like I had an insatiable appetite for words and other linguistic material and it was very painful to realize that I didn't enjoy learning anymore.Instead of being fun it became a struggle,a drag.It seems to have improved a little bit although I don't retain Information like I used to do.I also have difficulty remembering names.

    I think I looked for studies into CFS and brain atrophy but I don't remember what I found,maybe that studies had found that other areas o the brain had been affected in other patients.I also looked into liver disease(I suspect that my CFS is undiagnosed liver damage)and brain atrophy,and there were articles regarding liver cirrhosis and brain atrophy.I got tired and I gave up before I found anything on cholestatic liver disease and brain atrophy.Maybe I also thought that there was noone I could go to even I found information that matched my test results.

    I wasn't able to get another appointment with a neurologist(there weren't any appointments left until the end of 2017).Have you been told if there is a treatment,if there are any supplements that might help?
     
    pattismith likes this.
  4. pattismith

    pattismith Senior Member

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    Hi @Vickytoria1988 ,

    Cerebral atrophy can occur in some diseases like Alzheimer and Multiple sclerosis, although you certainly don't have these diseases, as they are associated to a much more serious atrophy than you have: Yours is very localized and probably very light.

    Any way, you may be interested to know that some doctors think that Herpes family viruses and some bacteria like Chlamydia pneumoniae, and some Spirochaete (family of the Lyme bacteria) have been suspected in these brain diseases:

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2730674/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3171359/
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2825657/

    Fungus have also ben found in Alzheimer brain, but no one knows if they had a role in the pathology or if they were a consequence.

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5514053/

    Thiamine has been show to help with Alzheimer, and Nicotinamide was shown to help with Parkinson (and maybe Alzheimer), so if I had any cerebelar atrophy, I would take it both.

     
    Last edited: Jul 30, 2017
    Chocolove, cfs6691 and Webdog like this.
  5. wastwater

    wastwater Senior Member

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    I wondered if I might have this
     

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