From doctor who uses CSS model for ME: "There is no such thing as “central sensitization disorder” There are central sensitivity syndromes (with an “s”): this is an umbrella term that simply groups conditions that commonly co-occur. For example, over 50% of ME/CFS patients have FM, and over 25% have IBS. Other conditions that commonly co-occur include: POTS (Postural Orthostatic Tachycardia Syndrome), Multiple Chemical Sensitivities, Migraines, Temporomandibular Disorder, Non-Cardiac Chest Pain, and others. In fact, IBS and POTS are part of the diagnostic criteria for ME/CFS. No one yet knows if these other conditions simply represent the idiosyncrasies and variability of ME/CFS and FM. The interesting thing is that when you treat one, the others tend to improve: arguing for some physiologic commonalities. I often see the term Central Sensitization Syndrome used as if it is a condition, when it simply implies the association of a number of conditions with overlapping patho-physiologies: immune, inflammatory, neuroendocrine, altered gut microbiome, abnormal pain processing, etc"
The illness is explained to patients in this CSS framework. No testing done for viral or bacterial infections. No treatments given to those who have done outside testing which reveal active infections.
Any thoughts how to respond to this physician?