1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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The Chronic Fatigue Initiative and Interview with Mady Hornig
In a follow-up article to the recent IACFS/ME conference presentation in San Francisco, and after speaking at length with Dr. Mady Hornig, 'searcher' delves deeper into the impressive work being completed by the Chronic Fatigue Initiative, and focuses in on those cytokine results ...
Discuss the article on the Forums.

Celebrating the ICC!!!

Discussion in 'General ME/CFS News' started by Nielk, Jul 21, 2011.

  1. Nielk

    Nielk

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    BREAKING NEWS - Myalgic Encephalomyelitis: International Consensus Criteria Source: Journal of Int
    www.prohealth.com


    BREAKING NEWS - Myalgic Encephalomyelitis: International Consensus Criteria Source: Journal of International Medicine, July 20, 2011

    ProHealth.com
    by International Consensus Panel
    July 21, 2011

    [Note: This definition of ME was produced by an International Consensus Panel of expert clinicians and researchers: Bruce M Carruthers MD, CM, FRCP(C), Marjorie I van de Sande BEd, Kenny L De Meirleir MD, PhD, Nancy G Klimas MD, Gordon Broderick PhD, Terry Mitchell MA, MD, FRCPath, Don Staines MBBS, MPH, FAFPHM, FAFOEM, AC Peter Powles MRACP, FRACP, FRCP(C), ABSM, Nigel Speight MA, MB, BChir, FRCP, FRCPCH, DCH, Rosamund Vallings MNZM, MB, BS, MRCS, LRCP, Lucinda Bateman MS, MD, Barbara Baumgarten- Austrheim MD, David S Bell MD, FAAP, Nicoletta Carlo- Stella MD, PhD, John Chia MD, Austin Darragh MA, MD, FFSEM. (RCPI, RCSI), FRSHFI Biol I (Hon), Daehyun Jo MD, PhD, Don Lewis MD, Alan R Light PhD, Sonya Marshall- Gradisbik PhD, Ismael Mena MD, Judy A Mikovits PhD, Kunihisa Miwa MD, PhD, Modra Murovska MD, PhD, Martin L Pall PhD, Staci Stevens MA.]

    The label 'chronic fatigue syndrome' (CFS) has persisted for many years because of lack of knowledge of the etiological agents and of the disease process.

    In view of more recent research and clinical experience that strongly point to widespread inflammation and multisystemic neuropathology, it is more appropriate and correct to use the term 'myalgic encephalomyelitis' (ME) because it indicates an underlying pathophysiology.

    It is also consistent with the neurological classification of ME in the World Health Organization's International Classification of Diseases (ICD G93.3).

    Consequently, an International Consensus Panel consisting of clinicians, researchers, teaching faculty and an independent patient advocate was formed with the purpose of developing criteria based on current knowledge.
    Thirteen countries and a wide range of specialties were represented.

    Collectively, members have approximately 400 years of both clinical and teaching experience, authored hundreds of peer reviewed publications, diagnosed or treated approximately 50,000 ME patients, and several members coauthored previous criteria.

    The expertise and experience of the panel members as well as PubMed and other medical sources were utilized in a progression of suggestions/ drafts/reviews/revisions.

    The authors, free of any sponsoring organization, achieved 100% consensus through a Delphi type process.

    The scope of this paper is limited to criteria of ME and their application. Accordingly, the criteria reflect the complex symptomatology.

    Operational notes enhance clarity and specificity by providing guidance in the expression and interpretation of symptoms.

    Clinical and research application guidelines promote optimal recognition of ME by primary physicians and other health care providers, improve consistency of diagnoses in adult and pediatric patients internationally, and facilitate clearer identification of patients for research studies.

    Source: Journal of International Medicine, July 20, 2011 (Early View). For information on affiliations of this international author consortium, click on author information at http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2796.2011.02428.x/abstract
  2. LaurelW

    LaurelW Senior Member

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    Hooray! Does this mean we can drop the CFS now and just call it ME?
  3. Nielk

    Nielk

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    It sounds that way to me.
    We can shed the yoke of CFS. We are free! It's ME from now on...I think.
  4. Nielk

    Nielk

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    Some really big, impressive names here who came to this consensus. I hope the Wessleys of this world are reading this and weeping!
  5. Ember

    Ember Senior Member

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    At last!

    (Need more characters to post, but that says it all for me.)
  6. Nielk

    Nielk

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    Are you al sleeping?????????????????????????/
    I think this is AMAZING!!!!!!!!!!!!!!!!!!!!!!!!!
    Why isn't everybodt jumping on this news?
  7. Sean

    Sean Senior Member

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    An important step forward. :victory:
  8. Nielk

    Nielk

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    I think everyone must be in shock and disbelieving.
  9. Ember

    Ember Senior Member

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    Perhaps the title of the thread looks like an old discussion rather than a piece of "Breaking News."
  10. KnightofZERO

    KnightofZERO

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    Time for Wessely and White and Sharpe to find a new group to

    kick around.

    --though I feel sorry if Wessely really is being given free reign to investigate war veterans...

    But finally, maybe we'll have all the "it's all in the mind" or even more weaselly "it's all in the mind because the mind is all in the brain" King's College/CDC people largely out of our condition.

    Then there may be real progress at a much more rapid pace. One can hope!
  11. max

    max *****

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    Twighlight zone stuff - its that alternate reality thing again - I'll look tomorrow and may believe it more then.

    Had a really bad day with an NHS blood specialist who takes the psychiatrists and NICE at face value and 'trusts people', and believes there is no agenda. - although he accepts there is 'controversy' and asks us, "do you know why you have abnormalities in your liver enzymes?"

    I did however insist he used the term ME !

    I will read the OP again, sleep on it, and have another look tomorrow - inside I am very cautiously smiling but I've been here so many times before and I just can't allow myself to accept this excellent news as 'official' until I see it in one of Murdochs rags and on the Beeb etc.

    Already planning where to shove it if its 'real' :angel:


    max:D

    ps, hope there's no typos, please excuse if there are.
  12. Nielk

    Nielk

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    DID YOU SEE THE NAMES THAT WORKED ON THIS?

    Bruce M CarruthersMarjorie I van de SandeKenny L De MeirleirNancy G KlimasGordon BroderickTerry MitchellDon StainesAC Peter PowlesNigel SpeightRosamund VallingsLucinda BatemanBarbara Baumgarten-AustrheimDavid S BellNicoletta Carlo-StellaJohn ChiaAustin DarraghDaehyun JoDon LewisAlan R LightSonya Marshall-GradisbikIsmael MenaJudy A MikovitsKunihisa MiwaModra MurovskaMartin L PallStaci Stevens
  13. max

    max *****

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    Why no Wessely, Sharpe, White or Chalder? This is heresy!

    Seriously, I have to sleep, its 3-42am on my sofa

    max
  14. illsince1977

    illsince1977 A shadow of my former self

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    Woe is ME! Sorry, couldn't resist!
  15. Vanguard

    Vanguard

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    I joined the site yesterday and see this tonight, so wild. Is this as significant as it seems? Will it get any media coverage without CDC recognition?
  16. ixchelkali

    ixchelkali Senior Member

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    The name change isn't the most important thing

    The name change is big, but I think the new consensus criteria is even bigger. I can't wait to read it, but with that all-star line-up of authors, it has to be good. It's such a strong statement, too: 100% consensus and no sponsors.

    I know we need to actually see the criteria, but assuming it's as good as I think it will be, we need to jump on getting it adopted, especially by the CDC. And then insisting that it become the standard criteria for research. We could start with trying to get the CFSAC to recommend its adoption.

    I know, I'm getting ahead of myself until we can read the document, but this is very exciting news.
  17. RustyJ

    RustyJ Contaminated Cell Line 'RustyJ'

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    We, the ME/[STRIKE]CFS[/STRIKE] patients are the sponsors:D
  18. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    Wessely etc...yer times running out.
  19. Carrigon

    Carrigon Senior Member

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    I hope they really do this. If we can just kill the CFS name once and for all and use a term like ME, we will get some respect, at least here in the US. If a doc hears Myalgic Encephalomyalitis, they don't laugh or dismiss you, it sounds like a real medical term. It would remove the horrible stigma of CFS, no more being afraid of telling people what you have.
  20. jace

    jace Off the fence

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    England
    Full International Consensus Criteria

    This is the best day! Here's a pdf of the full text

    Attached Files:

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