Hi everyone, if you have Chronic EBV, I would love to hear your experiences. When this reactivated in 2013, it was like a switch went off in my brain and I became super anxious and jittery. If someone told me I had a thyroid problem, I would have believed them. Through the long and torturous diagnostic process (still sort of underway today), there have been bouts of this really rammy, jumpy, panicky feeling. Sort of worse in the morning till lunchtime. I find that it has gotten increasingly WORSE on the Valcyte (Im on week 6). I feel shaky and going nuts. It doesnt help that I am still going through tests. Im so concerned how much this chronic infections has damaged me. We are sure I have CEBV, but not sure its CFS/ME. (I dont have fatigue and I have mainly full body nerve issues from the CEBV including a wasting calf muscle). I feel like its infected my brain/nerves. I feel like I need an IVIG of something to stop this. Running around from dr to dr is just taking so much time. I can't believe its 2 yrs into this and Im no closer to feeling better or an answer. I wonder if the Valcyte reaction is a good thing. Thanks. Would love to hear from anyone with CEBV.