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CDC's XMRV Q&A on Blood Donation Updated

Discussion in 'General ME/CFS News' started by ixchelkali, Jul 11, 2010.

  1. ixchelkali

    ixchelkali Senior Member

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    Long Beach, CA
    The CDC website Q&A on XMRV has updated. They've changed their answer to the question
    • "Should an individual with diagnosed chronic fatigue syndrome donate blood?"
    Last week the answer read:
    • At the present time, there are no specific recommendations to defer donors who have chronic fatigue syndrome.
    Now it says
    • At the present time, there is no FDA guidance to defer donors who have chronic fatigue syndrome in the United States. However, FDA regulations require that a donor should be in good health. Medical directors at blood collection centers should exercise judgment in determining whether individuals with a history of CFS are in good health at the time of donation.
    I think they updated the prostate cancer blood donation answer, too, but I don't have a copy of what it said last week, so I'm not sure.
  2. Dainty

    Dainty Senior Member

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    Washington State
    Thanks for catching this!
  3. dsdmom

    dsdmom Senior Member

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    Very interesting....maybe it is their prelude to changing it more? We all know the CDC is going to try to cover their ass if the sh*t hits the fan...
  4. taniaaust1

    taniaaust1 Senior Member

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    im unsure how to take that change.. obviously there is a reason why they went to the trouble of changing it. Of cause now if anything goes wrong with the blood stuff.. the CDC can blame the FDA as it clearly states they are basing what they say on the FDA stuff.

    Does that mean if shit hits the fan and it ends up coming down to a blame game.. that the FDA can then blame the medical director at the blood centre for making a wrong judgement of someones health.

    I guess this stops those who are on oxygen and wheelchair bound from being able to donate blood in protest :p

    CDC "it's not our fault" ... FDA "it's not our fault".....
  5. Stone

    Stone Senior Member

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    My blood donation query to CDC last week *yawn*

    Here's an email I sent the CDC last week and their response following.


    Sent: 7/5/2010 06:12:47 AM
    To: cdcinfo@cdc.gov
    Subject: Infectious Disease

    Dear CDC,
    I am a patient with CFS. I have recently been confused by conflicting
    information about CFS and I am hoping you can straighten it out for me. I
    have been advised by others with CFS that it is not safe to give blood because
    CFS might be infectious. I have read that CFS patients in Canada, New
    Zealand and Australia are not allowed to donate blood. What is the official
    position of the CDC on this matter? Is it or is it not safe to donate my
    blood? If my illness is caused by a virus, then I would certainly not want
    to risk infecting others. Please advise.
    Thank you,
    " Stone"
    -----------------------------------------------------------------

    Thank you for your inquiry to CDC-INFO.

    Your questions have been forwarded to the appropriate CDC program for their information. They will contact you directly if they have any questions.

    In the meantime, you may want to contact the Food and Drug Administration (FDA) as they are responsible for the regulation and safety of the blood supply in the U.S. They can be reached by emailing ocod@fda.hhs.gov or visit their website:
    http://www.fda.gov/BiologicsBloodVaccines/BloodBloodProducts/default.htm

    The CDC website provides basic facts about chronic fatigue syndrome (CFS) and ways to treat it. There are materials on the website for patients and doctors as well as scientific publications. The website also provides links to other Federal websites for CFS.

    More information on CFS is available on the following websites:

    Understanding Chronic Fatigue Syndrome: A Guide for Patients
    CDC
    http://www.cdc.gov/cfs/pdf/UnderstandingCFS.pdf

    Recognition and Management of Chronic Fatigue Syndrome: A Resource Guide for Health Care Professionals
    CDC
    http://www.cdc.gov/cfs/pdf/HCPManaging.pdf

    CDC Resources
    Chronic Fatigue Syndrome
    CDC
    http://www.cdc.gov/cfs/

    External Resources
    Chronic Fatigue Syndrome Advisory Committee
    Department of Health and Human Services
    http://www.hhs.gov/advcomcfs/

    National Women's Health Information Center
    Department of Health and Human Services
    http://www.womenshealth.gov/faq/chronic-fatigue-syndrome.cfm

    Health Finder
    United States Department of Health and Human Services
    http://www.healthfinder.gov/scripts/SearchContext.asp?topic=171

    Trans-NIH Working Group for Research
    National Institutes of Health
    http://orwh.od.nih.gov/cfs.html

    Thank you for contacting CDC-INFO. Please do not hesitate to call 1-800-CDC-INFO, e-mail cdcinfo@cdc.gov, or visit www.cdc.gov if you have any additional questions.

    CDC-INFO is a service of the Centers for Disease Control and Prevention (CDC) and the Agency for Toxic Substances and Disease Registry (ATSDR). This service is provided by Vangent, Inc. under contract to CDC and ATSDR.

    L3GZ-5820/dp
    cfs

    [THREAD ID:1-1SNPHH] [SR No.:1-108621126]
  6. dsdmom

    dsdmom Senior Member

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    I find it interesting that in their email to you they make it clear that it's the FDA's responsibility to make sure the blood supply is safe. It's like they are taking themselves out of it.

    I also love how in the list of links they sent you they include the department of women's health. Because we all know this is strictly a woman's disease, right?
  7. Gemini

    Gemini Senior Member

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    Stone,

    Excellent letter.

    Would you consider sending it to the FDA and then posting their response?

    Gemini
  8. V99

    V99 *****

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    It's a silly game for them to play being the CENTRES for disease CONTROL, as opposed to Food and Drug ADMINistration. Centres Control v Admin.
  9. Dainty

    Dainty Senior Member

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    $5 says they'll defer to the CDC... :rolleyes:

    Edit: V99, I agree. And since when did the safety of the blood supply from infectious diseases become the responsibility of an agancy responsible for the safety of food and drugs? No one's planning on eating this stuff... :p
  10. SOC

    SOC Moderator and Senior Member

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    USA
    :D It's becoming rather entertaining to watch the CDC wiggling around trying to cover its whatzit while its a$$ is hanging out.
  11. taniaaust1

    taniaaust1 Senior Member

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    Great letter stone :) .. and good to have thier replies, all this in public eyes.

    I really hope you are able to follow it up to the FDA. I wonder if they will give a different response to someone who says the FDA is sending them there for info.. to someone who doesnt say that (what's the probability then they will tell one to contact CDC).

    It would be great to know who's responsible before any sh*t hits the fan so we all know were to said our mail too.
  12. Gemini

    Gemini Senior Member

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    Secretary of Health & Human Services, Kathleen Sebelius, oversees the CDC, FDA, NIH and 8 other agencies, incl. Office of Inspector General, which investigates program & management problems.

    She's the person.

    Gemini

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