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CDC XMRV Retrovirology Study on CFS Published

Discussion in 'XMRV Research and Replication Studies' started by KFG, Jul 1, 2010.

  1. Cort

    Cort Phoenix Rising Founder

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    Unfortunately I think it was inevitable. The person who supplies the patients is always on the document even if they didn't participate in the study itself. I assume that's what happened. I was surprised to see Heineine show up - I guess he's still in the Retro division of the CDC.
     
  2. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Hey, I got pajamas like that. My pajama wardrobe expanded after I got sick.

    Tina
     
  3. Cort

    Cort Phoenix Rising Founder

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    I don't think he is - I think he's been convinced that there could be some holes in the study. His statement that the paper has not been accepted for publication, however, is at odds with this statement from the WSJ "
    The paper was accepted for publication in the journal Proceedings of the National Academy of Sciences of the United States of America but is on hold, according to Ashley Truxon, media coordinator for the journal" Could it get any weirder?

    He's a well published researcher, though - he's no lightweight. I imagine he's doing his best to back up his results. This has got to be extremely embarrassing for him.

    Its also got to be embarrassing for PNAS as well. After all they approved the paper; their peer reviewers said it was a good paper - and now the DHHS is implying well, it needs more work....and now Dr. Alter is agreeing with that apparently. It makes their reviewers look a little amateurish. I imagine they would REALLY love to publish a positive paper now.
     
  4. George

    George waitin' fer rabbits

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    Hey Cort
    I wanted to post this again. I think it is very significant. William C Reeves conceived and designed the study, he provided patient samples and he wrote the manuscript. This had to be done before his transfer. Dr. Elizibeth Unger's name is nowhere to be found on this and it would have to include her if she was dirctor of zoonotics and ID section at the time.
     
  5. Cort

    Cort Phoenix Rising Founder

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    Thanks - he was a central player then. He didn't do the testing but he was involved in all other aspects of the study - so much for the just provided the patients theory ! :)
     
  6. jspotila

    jspotila Senior Member

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    Dribs and drabs is what we're getting right now. The Association is passing on information as it becomes available. I share your concern about the uncertainty and anguish this situation is creating in all of us.
     
  7. Greggory Blundell

    Greggory Blundell *****

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    Cort, it seems readily apparent to many that the CDC's study is porous, yet there it is for the world to take note of.
     
  8. acer2000

    acer2000 Senior Member

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    I suspect both studies will be released. I think we are doubting ourselves here. I am pretty sure what happened is DHHS caved to pressure from both us and other scientists and decided not to "meddle" and will be publishing both papers for the scientific community to review. This is the only thing that makes sense - since they claim to both be published today, and the CDC dropped theirs first by a couple hours.
     
  9. usedtobeperkytina

    usedtobeperkytina Senior Member

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    If the Canadian Criteria group is different, then how is the research going into the cause of that illness, which no doubt many Americans have?

    And what is it called? I want to ask my doctor if I have it. Is there any information about that illness on the CDC Web site?

    Tina
     
  10. Bob

    Bob

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    Yes, this study does seem to smack of the Reeves era, including the loaded wording which they used... Let's hope that things will start to change from this point forwards now that Reeves' influence in future CFS studies is diminished... well, we can always hope can't we!
    Personally, I think that the patient samples are not important, nor are any alledged patient cohorts relevant... This is just a smokescreen. The CDC just failed to detect XMRV. Period.
    Then they tried to use their failed study to claim that there is no link between XMRV and ME, when we already know that there is a link.
     
  11. Levi

    Levi Senior Member

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    Consensus comes first . . .

    It is understandable that the powers that be wish to "steer" published research on XMRV to a general consensus on the subject. Particularly research performed by U.S. government agencies. Science is political, and politics are in full play at the moment. I would suggest that folks just consider the NIH research to be quashed until further notice; probably indefinitely.


     
  12. health insurance

    health insurance health insurance health insurance DID YOU REALLY THINK THEY WILL ALLOW FOR ANOTHER NEW HIV TYPE OF DISEASE TO TAKE THER PROFITS. It is not just the CDC there are higher powers at play here.
     
  13. dsdmom

    dsdmom Senior Member

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    I can't imagine that serious scientists who have published hundreds of studies (Atler and all those who reviewed it) have found something wrong with their study. What? Suddenly they realize they have mass contamination in their labs?

    It just doesn't seem to add up.
     
  14. jspotila

    jspotila Senior Member

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    The reason the Association published the statement on Facebook is because the NIH Office of Communications and Public Liaison sent it to us and we believe that patients deserve the information.
     
  15. Megan

    Megan Senior Member

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    The other thing that concerns me about this quote is "my colleagues and I", I hope this doesn't mean it is being taken out of his hands?
     
  16. dannybex

    dannybex Senior Member

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    Silly question perhaps, but...

    ...Did anyone actually expect the CDC study would confirm the WPI's results?

    I mean seriously -- Reeves said months ago they would not find it, and they didn't. This was to be expected, wasn't it? No doubt when reviewed by the WPI and others, they will find the same design flaws that were found in the other negative studies, and we'll move forward.

    THE TRUTH WILL WIN OUT.
     
  17. Wonko

    Wonko Senior Member

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    I'm not angry
    I'm not disappointed
    I'm not surprised

    me has had ME for a while now and me will wait for at least a while to see what happens

    but - if people think that the powers that be give a damn about whats on one of millions of forums or blogs then they mights be wrong - after all who cares about the opinions of a load of mentally ill people wherever they are epressed - as far as they are concerned thats what we are - because they say so
     
  18. Bob

    Bob

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    I agree with that Danny... XMRV is a proven fact, and it's not going away... The facts and the science and the truth will win in the end...
    This is how science works... Vested interests will always fight against the truth, but the truth will always win in the end!
     
  19. VillageLife

    VillageLife Senior Member

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    I spotted this on virology blog,

    QUOTE WSJ 30th June:
    The paper was accepted for publication in the journal Proceedings of the National Academy of Sciences of the United States of America but is on hold, according to Ashley Truxon, media coordinator for the journal.

    QUOTE DR ALTER 1st July:
    "Our paper has not yet been accepted for publication. My colleagues and I are conducting additional experiments to ensure that the data are accurate and complete. Our goal is not speed, but scientific accuracy." Harvey Alter, M.D
     
  20. Megan

    Megan Senior Member

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    Thank you 'jspotila'. I must say that got a quick reaction!

    Of course we deserve the information, that doesn't change the fact that the whole thing is just plain weird. I hope the association can be just as speedy in publicly condemning this situation. A statement to this effect at the time of release of the information would have been beneficial.

    I still think patients should be hitting the media with this.
     

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