The Real ME: A Stock Photography Resource for the Media
We’ve all seen them in the news stories about ME/CFS: the guy in a suit at the office, yawning; the beautiful woman sitting at her desk with her immaculate make-up and elegantly coiffed hair, hand to her head and looking slightly pained.
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CDC Web Survey

Discussion in 'Action Alerts and Advocacy' started by Ren, Mar 10, 2014.

  1. Ren

    Ren .

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    If it hasn't been shared elsewhere, I wanted to note that a web survey is (sometimes) popping up at www.cdc.gov. The survey has generic questions about the speed of the site and the ease of accessing information. They also ask about recommendations for the site and information presented on the site - or something to this effect.

    I just thought that this could be a quick and simple way to comment to the CDC about its support for CBT/GET for ME/CFS - and/or request info on PENE and associated dangers be posted - and/or request for the CCC and/or ICC to be added, etc.


    Edit:
    Perhaps a FOIA request can be used to access these collected comments at a later date. I didn't take a screenshot of the comments I included, but for others, this might be a good idea since information the government is responsible for seems to very often inexplicably disappear.
     
    Last edited: Mar 10, 2014
    Valentijn, Iquitos, Esther12 and 2 others like this.

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