James Coyne “lays waste” to PACE trial in Edinburgh
Sasha summarises Professor James Coyne's recent no-holds-barred talk on the PACE trial and points you to the slides, video, audio and transcript.
Discuss the article on the Forums.

CDC study - A pilot registry of unexplained fatiguing illnesses and chronic fatigue syndrome

Discussion in 'Latest ME/CFS Research' started by Bob, Aug 7, 2013.

  1. Valentijn

    Valentijn Activity Level: 3

    Messages:
    10,836
    Likes:
    24,282
    Amersfoort, Netherlands
    Looks like they're trying to exclude ME patients. Basically everyone except those with simple fatigue?
     
    MeSci likes this.
  2. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    Messages:
    3,763
    Likes:
    4,826
    WA, USA
    sorry, it's a little confusing the way it ended up when I pasted it as text.

    the fives above hypertension are the people from each referral group which had high CRP. (five from each group).

    The hypertension data is:

    one from the support group referral and none from the physician-referred group.

    however I don't think hypertension is terribly unusual; it's not uncommon in the general population so it would be present to some extent in us in any case. And some kinds of dysautonomia can cause hypertension at least in spikes.

    I don't think the people with exclusionary conditions would necessarily be all people who met the CFS criteria.

     
    Little Bluestem likes this.
  3. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Messages:
    7,218
    Likes:
    10,319
    Cornwall, UK
    Quite. I also wonder what they define as alcohol abuse. I may drink slightly more than the (current) UK recommendations, but I certainly don't abuse alcohol. I treat it with love and tenderness and try very hard not to spill it. :D
     
    JaimeS, SpecialK82 and Nielk like this.
  4. taniaaust1

    taniaaust1

    Messages:
    9,961
    Likes:
    8,228
    Sth Australia
    One thing which really struck me is that they took out of the enrollment those who have restless leg syndrome too. I would of been taken out of this study 2-3 times over. There is also a ME/CFS subgroup in which the people get osteroarthritis (this ME group is also the ME group with extremely high chances of getting thyriod cancer on top of things).
     
    JaimeS likes this.
  5. valentinelynx

    valentinelynx Senior Member

    Messages:
    386
    Likes:
    507
    Tucson
    I, too, was found to have high CRP, and no other diagnosis known. What makes the CDC think that ME & high CRP are mutually exclusive???
     
    WillowJ likes this.
  6. Valentijn

    Valentijn Activity Level: 3

    Messages:
    10,836
    Likes:
    24,282
    Amersfoort, Netherlands
    I've got high CRP too, as of a month ago. No idea if it's been high as long I've been sick, because that's the first time it was tested. ESR has consistently been high since I got sick.
     

See more popular forum discussions.

Share This Page