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CDC replication study delayed in order to prepare a press release?!

Discussion in 'XMRV Research and Replication Studies' started by awol, May 28, 2010.

  1. HopingSince88

    HopingSince88 Senior Member

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    when you look up vipdx.com on whois it shows that it is registered to Network Solutions (a major provider of domains). Maybe VIPdx forgot to pay the bill for their renewal?
     
  2. Ecoclimber

    Ecoclimber Senior Member

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    Mercer Island Wa
    Nope: Expiration Date: 2010-06-20
     
  3. Cort

    Cort Phoenix Rising Founder

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    Its from Kurt - right here on the Forums.
     
  4. HopingSince88

    HopingSince88 Senior Member

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    hmmm. curiouser and curiouser.
     
  5. Cort

    Cort Phoenix Rising Founder

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    XAND Forums are certainly a possibility but that will wait, at least on my part, until things are better differentiated; ie we have a good handle on has XM RV and who does not and how much of a role it plays. If it turns out to be 'the' or a major factor in a number of diseases XAND Forums would, I would think, make sense.
     
  6. Robyn

    Robyn *****

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    This is an old study and not a replication study it appears. It could be the CDC's attempt to try and put another negative study out there or maybe they did find something. Given their track record it hasn't been in the best interest of patients.
     
  7. kwietsol

    kwietsol

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    vipdx.com is back up. Does anyone see any changes?
     
  8. dean

    dean

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    When the HIV virus was discovered it was already clear that the syndrome, AIDS, was a communicable disease and policies had been developed to treat it as such...
     
  9. bullybeef

    bullybeef Senior Member

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    What I heard was, the powers that be weren't worried about gay deaths. It was only until heterosexual sufferers started dying after contracting HIV via blood transfusions. How disgraceful is that?!

    It also took 6 years until the HIV/AIDS campaigns to be shown on TV.
     
  10. FernRhizome

    FernRhizome Senior Member

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    This was just posted by Impish as a separate thread & went out over google. I wonder if it is related to the government's announcement at all? ~Fern

    HomeTeleconferencesTH0037X
    XMRV—Chronic Fatigue Syndrome and the Blood Supply
    Date: Friday, June 11, 2010 12:00 Noon CT
    Credits: 1 CME/CMLE
    MOC: PC, MK, PBL



    Louis M. Katz, MD
    Executive Vice President of Medical Affairs, Mississippi Valley Regional Blood Center, Davenport, Iowa

    Public health officials are investigating the potential threat to the nation’s blood supply posed by xenotropic murine leukemia virus-related virus (XMRV) – a retrovirus that some researchers believe may be responsible for chronic fatigue syndrome. This is a potential concern because, theoretically, the virus can be transmitted through transfusions as are other retroviruses such as HIV and HTLV.

    There is currently no FDA-licensed blood donor screening test and standards for diagnosis for XMRV infection. Currently, some blood collection agencies are considering the possibility of deferring donors with a history of chronic fatigue syndrome. Efforts are underway by the FDA and CDC to find effective tests for and determine the prevalence of XMRV.

    In this Teleconference, Dr. Katz, a specialist in infectious diseases and a prominent figure in national blood banking organizations, will provide in-depth background about the virus and its taxonomic relationships, bring you up to date on XMRV research initiatives, and clarify the issues surrounding the virus in transfusion medicine.

    Participants are encouraged to ask questions and engage with Dr. Katz.

    Louis M. Katz, MD has served as President of the Board of Directors of America’s Blood Centers, the national organization of independent, community-based blood centers that supply half of the blood components transfused in the United States.

    Dr. Katz was recently interviewed for The Wall Street Journal Article "New Threats to U.S. Blood Supply."

    Following the conclusion of this program, participants will be able to:

    Identify the taxonomic relationships of XMRV
    Recognize the disease associations that are being proposed for XMRV
    Justify the emerging interest in XMRV in transfusion medicine
    Evaluate current research initiatives
    Who should attend?
    Practicing Pathologists, Residents, Laboratory Managers, Bench Technologists & Technicians, Cytotechnologists, and Phlebotomists

    Live Webcast Option!
    As an alternative, you may view the slide presentation via the live webcast option – the slides are advanced automatically as you view them online while the audio is still accessed over the telephone.
     
  11. HopingSince88

    HopingSince88 Senior Member

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    Something is amiss. When you go to the page on Diagnostic Tests, it shows a listing of 'sponsored' tests...including computer tests and a car diagnostic test. This has to be Network Solutions putting up a weird page? And it still says it is 'under construction.'
     
  12. Dorothy

    Dorothy

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    I just visited the page and saw the same thing.....I think it's a good sign that it's "under construction". They may be redoing their site for the new antibody test? If I recall correctly, other sites that are "under construction" are also a hodgepodge of ads and such. And the VIPdx site went "down" the last time they offered a major new test. I've got my fingers crossed, and I also happen to have a whole stack of brown paper lunch bags that are super handy for hyperventilation. :)
     
  13. Lynn

    Lynn Senior Member

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    Yes this was the same web page that was up this morning for VIPdx. I think it is just a place holder and the content is not there.

    Lynn
     
  14. usedtobeperkytina

    usedtobeperkytina Senior Member

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    baker, very perceptive.

    Would CDC come out with test for commercial use before the other study, you know- the big one with multiple labs that Holmberg spoke about, comes out?

    I understand independent labs creating their own test, including VIP if they now have another test. But the key will be when FDA approves one, which means it is covered by insurance. I would be surprised if CDC came out with one when blood folks, is it Emory, is doing a big one that is supposed to answer all the questions.

    Maybe CDC is feeling the pressure from WPI if they have their own test, that is much better one.

    What I want to hear is that Labcorps and Quest are offering it. I am checking every day for that news.

    Tina
     
  15. Robyn

    Robyn *****

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    xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
     
  16. acer2000

    acer2000 Senior Member

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    Its not back up. Its still the generic DNS provider page. At least thats what I am seeing here... :-/
     
  17. lululowry

    lululowry Senior Member

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    I so relate Bob and Tina. This is getting worse and worse and worse for me by the day or minute - who knows? :confused::Retro tongue: So it is nice when we can joke about it among those who understand.:D
     
  18. Bob

    Bob

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    erm... sorry... what were we talking about? I can't remember...

    :D
     
  19. lululowry

    lululowry Senior Member

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    Athens, Georgia
    :D
    Huh? What?
    :tear:
    I think it's time for me to become a bag lady...pass it over!
    *pacing* (figuratively, of course!)
     
  20. bluebonnet

    bluebonnet

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    Hmmm. My ME/CFS doc told me that two new tests were coming out for XMRV in June from from Frank Ruscetti's lab at the NCI. One is a serology test to find antibodies and the second is more sensitive, one that is a quantitative test for XMRV. Wonder if this is why VIP is down?:confused:
     

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