Not sure this is in the right place, but with all the discussion about communicating with/changing the CDC, I thought this might be useful for advocacy purposes. The CDC is NOT a medical research facility. It is a Public Health organization. [my bolding] Notice the lack of original research, funding for research, lobbying for funding, or almost anything about newly discovered illnesses. The only mission they have that could be related to a new or mysterious illness is, "detect and investigate health problems", which they fell flat on their faces on over 25 years ago in Incline Village. IMO, they have no business in ME/CFS at all until we know enough about it to expect "prevention" and health professional training. Rather than wasting our time on the CDC, shouldn't we simply be insisting they get out of the ME/CFS business and concentrate our efforts on research organizations? Anyone else have thoughts on this?