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CDC has alternative therapies listed as suitable treatments on their website

Discussion in 'General ME/CFS News' started by taniaaust1, Dec 6, 2011.

  1. Hope123

    Hope123 Senior Member

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    Antivirals and immunomodulators are not mentioned anywhere on CDC site.

    I agree with SOC that the CDC is biased in their selection of evidence and what they choose to highlight on the site.
    In fact, some of the stuff cited is drawn from FM and chronic fatigue studies and not CFS. Some people with CFS have FM but they are not the same illness.
    justinreilly likes this.
  2. eric_s

    eric_s Senior Member

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    But antivirals and immunomodulators are pharmacological treatments, aren't they? "Symptomatic Treatment" and "Orthostatic Instability Treatment" are equally broad (what is "orthostatic instability" anyway? was that a typo? or did they not want to say "orthostatic intolerance" for whatever reason?).

    I don't mean to defend the CDC CFS website and i agree that it's bad.
    ahimsa likes this.
  3. Hope123

    Hope123 Senior Member

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    Yes, they are pharmacological treatments but no, the CDC doesn't seem to view them as pharmacological treatments for CFS. I'm correcting you because not everyone is going to look through the site and I like accuracy when it comes to things like this.
    justinreilly likes this.
  4. eric_s

    eric_s Senior Member

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    Do you know they are not included there? And if they are not, what is included then?
  5. SOC

    SOC Moderator and Senior Member

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    Oh, I thought they were looking for scientific evidence. ;)
  6. taniaaust1

    taniaaust1 Senior Member

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    I put that statement from the CDC onto wikipedia (worldwide one) the other day with the CDC link but it got taken off the page with the reason given for the removal "controversial". Hows that for biased!.. (its a complete breach of the wiki rules which say things have to be unbiased).

    I also started to put on that page too, other CFS treatments (currently just GET and CBT are really written about there) but that post of mine (the whole thing!!) was removed to on the grounds (I did include a backing reference) of "no origional research" .. I guess I need to include more references to what I stated.

    If anyone needs any advice on how to post on the world wide wikipedia ... feel free to ask me and I'll help explain things if I can.
  7. Cort

    Cort Phoenix Rising Founder

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    It is better but look at the emphasis - three psychological treatments are first - although antidepressants are last on the list - strange! If therapy is first - then antidepressants ought to be higher logically I would think. Actually drugs like klonopin are used much more than antidepressants.

    No antivirals, no pacing oddly enough even though they list sleep hygiene - there are odd gaps here which makes me wonder how much thought was placed in this.

    Professional Counseling
    Cognitive Behavioral Therapy (CBT)
    Graded Exercise Therapy (GET)
    Symptomatic Treatment
    Alternative Therapies
    Support Groups
    Pharmacologic Therapy
    Sleep Hygiene
    Pain Therapy
    Orthostatic Instability Treatment
    Antidepressants"
  8. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    Yes, I agree with Cort, I have no idea why some things are even on the list. Guess which ones, ha.
  9. Ember

    Ember Senior Member

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    Patients in the US don't feel they can afford an ME diagnosis, Tania. As far as I can see (as an outsider looking in), it's all in the hands of the insurance companies.

    What is the relationship between the CDC and the insurance companies? Apparently the CDC will need at least a year to collect data from their clinical colleagues and possibly engage "people that do not actually have contracts" to discuss with them the process of revisiting CFS-Fukuda. According to Dr. Unger, the CDC implements what the committees and the recommendations are. A meeting of experts will be prefaced by committees and pre-meetings, posting and comments, discussion and dialogue because everybody needs to have a voice in what the final product is.

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