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CDC drops CFS Toolkit in wake of IOM report

Discussion in 'General ME/CFS News' started by Simon, Apr 8, 2015.

  1. Simon

    Simon

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    CDC news - Toolkit dropped following Institute of Medicine report on ME/CFS - work on revision under way

     
    Last edited: Apr 8, 2015
  2. SOC

    SOC Senior Member

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    Yes!!! :thumbsup:

    We need a dancing in the streets emoticon. I guess these will have to do:
    :D:woot::balloons::wine::beer:
     
  3. Denise

    Denise Senior Member

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    Too bad its "Archive" as opposed to disposed of.

    Will the CDC replace the Toolkit and if so, with what and based on what material?
     
  4. A.B.

    A.B. Senior Member

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    I'm guessing the old toolkit is incompatible with the message of the IOM report.
     
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  5. jimells

    jimells Senior Member

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    Is there a press release on this? This is their chance to announce to patients that they are maybe considering new policies.

    Or maybe they are finally feeling ashamed, and prefer to dump it down the memory hole. In a year we'll have forgotten it ever existed. In two years, when advocates bring it up as evidence of bad behavior, we'll be told, "That was a long time ago, so it doesn't count anymore".

    p.s. I looked at the webpage closer and realized that it is sort of a press release, but the url is funny - it's not indexed under the "\cfs\news\features\" like the other press releases on this page.

    Now I'm off to look for the toolkit webpage to see if it's really gone...
     
    Last edited: Apr 8, 2015
    oceiv, *GG* and Bob like this.
  6. snowathlete

    snowathlete

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    [​IMG]
    [​IMG]
     
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  7. jimells

    jimells Senior Member

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    While poking around the CDC website I found a link to a Five Year Plan. Now I realize we're supposed to sneer at Five Year Plans, 'cause we know they are Communistic, somehow. At least, that's what I learned in grade school 50 years ago.

    It will be an interesting trip down memory lane to study this document and see if CDC met any of it goals...
     
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  8. worldbackwards

    worldbackwards A unique snowflake

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    It would be nice to see it incinerated at high temperatures, followed by a dedicated stamping-on until it's ground into ashes beneath my feet. Or possibly, could it be ejected into deep space, left to float aimlessly for millions of years in the cold, empty nothingness, shorn of all meaning and impact until it eventually burns up in the vicinity of some distant star?

    I'm a bit partisan on this...
     
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  9. alex3619

    alex3619 Senior Member

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    One small step for the CDC, one giant leap for ME.
     
  10. Amaya2014

    Amaya2014 Senior Member

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    Like dinosaur bones and all things of antiquity!! Here's to "All things new" ME/CFS fam! It's been a rough time for me...the approaching summer and heat of the sun is brutalizing but my spirit is cheering!!!;):whistle::thumbsup::balloons::balloons:
     
  11. Esther12

    Esther12 Senior Member

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    I don't know the details of this, but have seen people complaining about the CDC toolkit for a long time, so this is probabyl a good thing, eh?
     
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  12. A.B.

    A.B. Senior Member

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    From the IOM report brief:

    Hopefully this development is exactly what it looks like: a shift from a biopsychosocial oriented toolkit to something reality based.
     
    Roseblossom, Amaya2014, SOC and 4 others like this.
  13. jimells

    jimells Senior Member

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    It would be fun to have a public burning in front of CDC headquarters. I wish I were well enough to attend.
     
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  14. Daisymay

    Daisymay Senior Member

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    Good news! :)
     
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  15. Sean

    Sean Senior Member

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    Progress!

    Though I disagree that the toolkit should be burned to ashes and written out of history. I want it held up for all time as an example of how wrong psycho-experts can be, and how badly politics and ideology can poison a critical scientific process.

    And the dancing Imperial Stormtrooper is hilarious! :rofl:
     
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  16. *GG*

    *GG* Senior Member

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    I think this might be progress also!:

    http://solvecfs.org/suzanne-d-vernon-steps-down-from-scientific-director-post/

    gg
     
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  17. geraldt52

    geraldt52 Senior Member

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    Good riddance to both of them. If a bus is leaving the station, I can think of several other people/things I'd like to see on it...
     
  18. Aurator

    Aurator Senior Member

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    Call me less personally detached or something, but I can't help wanting to see it printed off in multiple copies on special hard paper, rolled tightly into unyielding scrolls, and then inserted forcibly up a certain anatomical orifice of all the people involved in letting it see the light of day in the first place.
     
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  19. Kati

    Kati Patient in training

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    oceiv likes this.
  20. *GG*

    *GG* Senior Member

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    I did start a thread on it, under Advocacy.

    GG
     
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