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CDC Contempt for ME Sufferers: the "Dear Sirs, I am SICK" joke letter

mezombie

Senior Member
Messages
324
Location
East Coast city, USA
Ramsay definition

Why would they keep looking to find the cause when they found it? It is hysteria, neurosis. I mean, like detectives, once they get a little bit of evidence, they form a conclusion. Then, they will make all other evidence they get fit their conclusion. Does the Ramsey name ring a bell?

I don't quite understand, Tina. Do you think Ramsey formed his conclusions based on just a little bit of evidence? It seems to me he described what he encountered quite well. He didn't have the tools we have now, and left the door open to refinement of his definition .

See http://name-us.org/DefintionsPages/DefRamsay.htm
 

maryb

iherb code TAK122
Messages
3,602
Location
UK
After reading that seems to me Ramsey was one of the best docs around at that time.
 

justinreilly

Senior Member
Messages
2,498
Location
NYC (& RI)
I don't quite understand, Tina. Do you think Ramsey formed his conclusions based on just a little bit of evidence? It seems to me he described what he encountered quite well. He didn't have the tools we have now, and left the door open to refinement of his definition .

See http://name-us.org/DefintionsPages/DefRamsay.htm

MEZombie,

Welcome back! Poor you. You have a lot of reading to do (on the CAA thread)!

Tina might mean Jon Benet Ramsey (maybe I'm just thinking that since I live a few blocks from where they did).
 

justinreilly

Senior Member
Messages
2,498
Location
NYC (& RI)
Why?

But I still don't understand why. What's the payoff for the CDC to sweep this under the rug? I would think some young upstart there would want to make a name for himself and figure this damn thing out. The answer to these questions us usually "money", but can anybody explain who gains anything monitarily (or otherwise) by not 'solving CFS'?

This is of course a hard one b/c you can't see into anyone's head. Hillary Johnson's "the Why" addresses this:
http://www.oslersweb.com/the_why___a_speech_in_london_86981.htm

I see it as something like the following based on Osler's Web: Initially the only strikingly abnormal finding in the Tahoe cohort were abnormal Epstein Barr antibody titers. Apparently, in epidemiology, reports of epstein barr outbreaks were felt to be notoriously false (but in hindsight, maybe many of those 'false' outbreaks were ME outbreaks), so CDC was skeptical despite the outbreak.

Over the months Cheney and Peterson kept contacting CDC and sending in test results. Kaplan and Holmes eventually went out there to shut them up, but apparently mostly to ski. They didn't really investigate and then published in CDC's weekly journal that there was nothing.

Right from the beginning they and NIH misappropriated all the ME money for years and lied to Congress about it in their in person testimony year after year. After they had misappropriated the first dollar, I think they had pretty much crossed the rubicon and had to keep constantly lying about everything in their (successful) attempts to retain their careers and stay out of prison. All this was of course fueled by sexism and arrogance.

In the UK and Europe it seems to be more about saving insurers, including the governments, money. In the US there could, of course be some undiscovered bribes or other consideration flowing from insurers to the responsible people at CDC and NIH.
 

usedtobeperkytina

Senior Member
Messages
1,479
Location
Clay, Alabama
Something got lost in the quick reference. Sorry, it is my fault. I am not talking about that Ramsey, I am talking about this Ramsey: http://images.teamsugar.com/files/upl1/10/104169/28_2008/52023009.preview.jpg

I thought the context of talking about detectives in a criminal investigation would make it clear. This was a BIG, BIG news story here in US. Parents were suspects early on. Heck, I even thought they did it or were covering for their son. About a year or two ago, parents were formally declared to not be suspects.

Gerwyn, I can certainly understand your feeling. I don't know if I would go that far. I think I will wait and see how they handle this XMRV research, which is in a totally different area before I write off every part of it. Plus, change in leadership may make a difference. But certainly, trust has been lost, to put it mildly. That means to gain trust back, CDC and any who were complicit in their biased approach, must also work harder to gain that trust back.

If I was falsely accused of a crime, would I get an attorney? Would I want to sit down and talk to detectives without an attorney present? I'm not talking about helping detectives in the beginning, I am talking about after I have been declared as the person they think did it.

Just in, I think you hit the nail on the head.

Tina
 

mezombie

Senior Member
Messages
324
Location
East Coast city, USA
Thanks, Justin and Tina, for clearing up my confusion regarding the Ramsey reference.:ashamed:

And thanks for the welcome back, Justin, though I won't be able to stick around long. I'll be offline starting Tuesday -- again.:sad: