Professor & patients' paper on the solvable biological challenge of ME/CFS: reader-friendly version
Simon McGrath provides a patient-friendly version of a peer-reviewed paper which highlights some of the most promising biomedical research on ME/CFS ...
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CBT ‘has no impact’ on juvenile fibromyalgia physical activity (contrasts with subjective outcomes)

Discussion in 'Fibromyalgia' started by Dolphin, Oct 8, 2012.

  1. Dolphin

    Dolphin Senior Member

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    People aware of the contrasting results with CBT in CFS, where patients report improvements over control groups without activity increases, may be interested in the following. I don't have the CBT protocol but it sounds like it could be based on encouraging activity.


    Article continues at:
    http://www.news-medical.net/news/20...-juvenile-fibromyalgia-physical-activity.aspx
     
  2. Dolphin

    Dolphin Senior Member

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    Here's the abstract - abstracts can be harder to read for some people.


    *I gave each sentence its own paragraph
     
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  3. Dolphin

    Dolphin Senior Member

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    I was searching for this online and I see that previously released data from the same trial claiming all sorts of success with the treatment - seems very like what happens in ME/CFS

    This is their own press release:
    http://www.rheumatology.org/about/newsroom/2011/2011_01_36.asp




    *I gave each sentence its own paragraph
     
  4. Dolphin

    Dolphin Senior Member

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  5. Simon

    Simon

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    That's very interesting, thanks

    I wonder if anyone has ever been able to find a correlation between self-reported improvements in functioning and actomters in CBT trials?

    FWIW, from the initial study results:
    Just for my notes, more info on the Functional Disability Inventory used to measure self-reported improvements
     
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  6. Valentijn

    Valentijn Activity Level: 3

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    I think there's been several negative correlations found (the Dutch CBT trials), but they get buried or dismissed instead of being discussed rationally.
     
  7. Dolphin

    Dolphin Senior Member

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    I presume you are using "negative correlations" in the lay sense? A negative correlation could be a correlation with a negative slope, although I'm guessing that's not what you are referring to.
     
  8. Esther12

    Esther12 Senior Member

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    Thanks for pointing this out. The faith some seem to have in questionnaires as a measure of disability does seem worrying. Actometer's aren't perfect either, and probably even less so with FMS than CFS; but if the activity levels of patients were dramatically lower than healthy norms, and were not affected by CBT which is thought to dramatically improve symptoms because of the of the way questionnaires are filled in at the end of RCTs, that would seem to be a problem.
     
  9. Valentijn

    Valentijn Activity Level: 3

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    No, I meant it the other way. I was just wrong :) But yes, I should have said that a lack of correlation has been shown.
     
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