New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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CBS Mutation ( sulfur problems very interesting!!)

Discussion in 'Genetic Testing and SNPs' started by kel88, Jan 24, 2015.

  1. kel88

    kel88 Senior Member

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    Hi all!

    Im from the Netherlands so for me its difficult to read al medicall papers in Englisch!

    I did find a very interesting link with information about sulfer for people with autism but also people like us with CBS mutation

    Im homo CBS A360A and react so much on sulfur food.
    I thought i was react on producte with B6 in it... But now it looks like its because of the sulfur and ammonia.
    I read that ammonia and sulfur use the same enzym/pathway! So when ammonia is high you are not abel to use/cut sulfur.

    What can we do about it? Use high dose molybdenum ( wich form? And with every meal YUCCA?) yucca also reduce bad bacteria in the gut it seems...right..?

    Can anyone explain me in simple lanquage what this al means in the link? They explain what happend with sulfur problems thats what i understand but whats can we do about it?! A low sulfur dieet is almost not possible for me because i also have much allergie, lactose intolerant, fructose intolerant so i cant eat that much . I had also pregnancy diabetic so i woukd get type 2 defenitly when i become older...

    Can anybody help us out?

    Thanks so much :)

    http://newtreatments.org/ga.php?linkid=252
     
    AkeBono and Gondwanaland like this.
  2. Gondwanaland

    Gondwanaland Senior Member

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    @caledonia handled CBS issues succesfully, hopefully she will come by today and give you some hints.
     
    kel88 likes this.
  3. kel88

    kel88 Senior Member

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    Thank you gondwanaland :)
     
  4. minkeygirl

    minkeygirl But I Look So Good.

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    Left Coast
    Per my NP I use molybdenum. She had me take it for a few months before I started methylation. She said anywhere between 200-500 mcg although some here think that is too high. I settled on 300 and now take 250 mcg which is in a trace mineral I take. She did not have me change my diet.
     
  5. kel88

    kel88 Senior Member

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    Minkeygirl did you had any symptoms from sulfur? And are you testing youre urine?
    I read that you can take 1000mg. Im going to try 500 and go on to 1000 mg.
    But she menthiont another supplements but i dont understand what to take more and what to do more... Do you understand it?? She also talks about histidine do whe have to take that or not?? First i thougt yes but later she talks about the converting to taurine thats why i dont understand it... Maybe someone can?? :)
     
  6. caledonia

    caledonia

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    Cincinnati, OH, USA
    I did the long version described on the Heartfixer page. It took me 3 months. That's a pretty long time.

    So my suggestion would to try Ben Lynch's quickie CBS treatment first, for one week. He doesn't call it CBS treatment, but that's basically what it is. If you're having trouble with sulfur...

    http://mthfr.net/preventing-methylfolate-side-effects/2014/11/26/

    This is the CBS/sulfur treatment part

    There was one person on here who tried this and it did seem to help. You can also check sulfate levels with urine sulfate strips.

    I do take about 25mcg per day of molybdenum for maintenance of that pathway.
     
  7. kel88

    kel88 Senior Member

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    Thanks critterina! I will try moly and my multi contains B1 so that would be good :)

    But to avoid sulfur food would be hard! What are you eating on youre broth? How does youre meal over the day look like?
    I also read when you dont eat sulfur but the body does need it it takes it out of youre muscles it that correct?
     

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