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Case Definitions CFS/ME: A Systemic Review

Discussion in 'Latest ME/CFS Research' started by Firestormm, Feb 13, 2014.

  1. Firestormm

    Firestormm Senior Member

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  2. medfeb

    medfeb Senior Member

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    Thanks for posting. THere are a number of great comments here, including one by Twisk.
  3. Firestormm

    Firestormm Senior Member

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    Hey medfeb. How you doing? Not seen you about for a while :)
  4. biophile

    biophile Places I'd rather be.

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  5. alex3619

    alex3619 Senior Member

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    I think the point of this thread is that @Firestormm wanted to highlight the comments, which are very interesting.
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  6. Bob

    Bob

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    Just so people are aware, there's another thread about the main paper here:
    http://forums.phoenixrising.me/index.php?threads/what-a-new-cfs-definition-review-looks-like.28098/

    Case definitions for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review.
    Brurberg KG, Fønhus MS, Larun L, Flottorp S, Malterud K.
    7 February 2014
    BMJ Open 7;4:e003973.
    http://bmjopen.bmj.com/content/4/2/e003973.abstract


    The e-letter responses to the paper have been published on BMJ Open, here:
    http://bmjopen.bmj.com/content/4/2/e003973.abstract/reply
    or:
    http://bmjopen.bmj.com/content/4/2/e003973.abstract#responses

    e-letters by:
    • Jennifer M. Spotila
    • Robert Courtney
    • Angela Kennedy
    • R Simpson (Invest in ME)
    • Tom P Kindlon
    • Ellen M Goudsmit
    • Nasim Marie Jafry
    • Frank N.M. Twisk
    Last edited: Mar 12, 2014
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  7. biophile

    biophile Places I'd rather be.

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    @Firestormm and @alex3619 . Apologies if I did not pick up on the purpose of this thread.

    I was not sure whether you were introducing the paper or introducing the comments.
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  8. Firestormm

    Firestormm Senior Member

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    @biophile No worries. I was bolloxed when I wrote it and did it in haste. Thanks @Bob I might try and read the letters now.
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  9. Bob

    Bob

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  10. alex3619

    alex3619 Senior Member

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    These comments are uniformly interesting. I encourage anyone to read all of them.

    I wonder how many doctors think we should be passive observers in all this, obediently doing whatever they think we should do? The days of the ill-informed patient are dying, and I think that has a lot of the medical profession on edge as the dynamics of the doctor-patient relationship today no longer conform to the traditional model. This is a good thing for the medical profession, and for medicine, though I think many in medicine will find it difficult.

    I was hoping to compile a list of fallacies that pervade psychobabble some time this year, but I am at least a year behind in my investigation ... and its not getting easier.
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  11. Bob

    Bob

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  12. A.B.

    A.B. Senior Member

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    Very nice comment.

    CBT proponents preach the mind-body duality they claim to have overcome, they hold strong unproven beliefs while accusing patients of holding incorrect beliefs about reality, and they perpetuate stigmatization of certain conditions while claiming to be working towards overcoming stigmatization. They sure are a very confused bunch.
    Last edited: Feb 19, 2014
  13. Bob

    Bob

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    Last edited: Mar 4, 2014
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  14. Bob

    Bob

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  15. Firestormm

    Firestormm Senior Member

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    A very good letter I felt. Of course definitions and symptoms are only part of the issue - it is the flagging up of possible alternate diagnoses and the required exclusionary tests that can also help definite a more homogeneous group of likely ME patients. In part we are filtering patients, a more likely cause could be discovered at any point in the process or post-diagnosis and that may not be a poor reflection of the criteria. Some illnesses are just hard to spot until they develop and/or a patient (and doctor) say something or take note of something that might send an investigation in a new direction and lead to a discovery of cause. Until such time as we can determine what ME is and is not, and can then determine some form of test or tests: we can only really chip away at the heterogeneity and try to ensure that those we do exclude are not excluded by mistake: because that could prove a disaster for a patient.
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  16. Firestormm

    Firestormm Senior Member

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  17. Bob

    Bob

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    Last edited: Mar 12, 2014
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  18. Tom Kindlon

    Tom Kindlon Senior Member

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