Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Caroline Wyatt: I hid the effects of MS from BBC for 15 years

Discussion in 'Other Health News and Research' started by daisybell, Jun 21, 2016.

  1. daisybell

    daisybell Senior Member

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  2. AndyPR

    AndyPR Senior Member

    Are they necessarily exclusive though? And keep in mind this is the UK health system we are talking about, almost anybody potentially could get a diagnosis of ME - after all, we are only a bit more tired than normal. ;)

    Is becoming a religious affairs correspondent a rare effect of CBT perhaps??
     
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  3. Hutan

    Hutan Senior Member

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    Yes, given she now has MS, it seems likely the ME was a mis-diagnosis. Or perhaps her MS is now a mis-diagnosis of the ME?

    But what I found interesting was that ME was actually called 'ME', with a simple clarification that it is 'the chronic fatigue illness' and no hint of psychobabble. Yes, I know it was only mentioned in passing. But this is surely an improvement on the usual 'Chronic Fatigue Syndrome, the collection of symptoms reported by people who are (pick one or more) lazy/malingering/frightened of exercise and the world in general/hypochondriacal/psychosomatic.'
     
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  4. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    "She switched to become religious affairs correspondent, in 2014, after being treated for ME, the chronic fatigue illness, and will now switch to a presenting role."

    I interpreted this statement as referring to her mental health status: She became religious after ME treatment.

    Further strengthening the psychological link between ME and 'belief' (as in 'false illness belief').
     
  5. AndyPR

    AndyPR Senior Member

    Hmm, in this article, http://www.radiotimes.com/news/2016...speaks-out-after-multiple-sclerosis-diagnosis, there is this quote
    where the condition being talked about is MS.

    Also from our 'friends' at the Daily Mail http://www.dailymail.co.uk/health/a...veals-personal-battle-multiple-sclerosis.html

    ME is mentioned a couple of times in this one but only as part of the narrative of getting her diagnosis.

    So I personally think that, this time, the Telegraph article is just written in an unclear way, rather than specifically trying to get anti-ME messages in. And I also agree that simply referring to it as the "chronic fatigue illness" is a lot better than we've seen before.
     
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  6. Hip

    Hip Senior Member

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    The UK NICE guidelines for diagnosing ME/CFS are pretty similar to the CDC guidelines.
     

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