1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Phoenix Rising Adds Two New Board Members
Mark Berry introduces the new President of Phoenix Rising, Dr. Gary Solomon, and welcomes Professor Jonathan Edwards to the Phoenix Rising Board of Directors.
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Carlson Video

Discussion in 'General ME/CFS News' started by usedtobeperkytina, Feb 4, 2011.

  1. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Clay, Alabama
    Rik Carlson, of Vermont CFIDS Association, speaks about his recent movie in a three-part interview. http://www.invisibleillnesspodcast.com/

    The story is interesting. He mentions the anger he felt when he realized his physician was ignorant of it. I appreciate how we are all attacking the need for change on many fronts.

    Some are doing research, others are doing public advocacy, some are providing information to patients, some are working toward physician education.

    Rik takes the approach of helping people with their day to day, close to home issues. He wants families to understand the illness so they will be more supportive of those who are sick.

    Thank you Rik for mentioning the work PANDORA does.

    It takes a village, I guess.

    Tina

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