Bit of a long post so bear with me. Easier to do bulletpoints.
- Severe CFS since early 2010 (bedridden). Had to change mattress once in that time (April 2014), to a very soft 600 pocket sprung memory foam bed which basically collapsed under my weight. Never had a problem with pain when sleeping caused by mattress on either bed.
- CFS improved by September 2016 to the point where I could get about the house by crawling/sitting down and dragging myself along (including stairs) without post-exertional fatigue. Fair enough, I could only take a few steps before my legs became exhausted.
- Pocket sprung bed breaks down in September 2016. Since then, every other bed I've tried out in shops/home is agony. I feel exhausted after lying down, it feels like all my muscles are working and I get the post-exertional fatigue as I would if I'd done too much physical exercise. This pain would begin to set in within an hour of lying down.
- The only place where I feel vaguely comfortable is on my sofa, which is foam on top of pocket springs. It's a big two seater, and one of the cushions was softer than the other. I slept on this side from October to January without much issue until the foam failed and the springs started poking up through. When I slept on the firmer side I found that I was a lot more physically fatigued on the following day, albeit nowhere near the extent of a bed.
- When soft side of sofa broke, had to get it fixed. The guy completely replaced the foam and spring unit, making it hard as a rock and thus unsuitable to sleep on. He did put some foam in the middle, which made the "firmer" side more comfortable.
- Conversely, when I put a duvet in between me and the firmer side of the sofa, I found that it increased my pain and fatigue, seeming to act as another hard layer.
- Should add that I've looked at the likes of water beds, Tempur and specially designed mattress overlays for pressure care. Hate them and get the same pain as on regular mattresses. If I was to speculate, I'd suggest that the pressure relief makes weaker parts of my body have to work more.
- Without the sofa, I probably would be dead by now. I can't even spend an hour on any of the hundred plus mattresses I've seen without feeling like my body has taken a beating, so I don't see how I could have survived. Not a case of not giving the mattresses a fair go, as I tried a pillow top mattress for a month immediately after my old mattress broke down and every night was worse than the night before, with my physical capabilities taking a drastic downturn in that time.
I'm stuck for what to do next. Feel like smashing my head off the wall. Any advice/solutions welcome.
- Severe CFS since early 2010 (bedridden). Had to change mattress once in that time (April 2014), to a very soft 600 pocket sprung memory foam bed which basically collapsed under my weight. Never had a problem with pain when sleeping caused by mattress on either bed.
- CFS improved by September 2016 to the point where I could get about the house by crawling/sitting down and dragging myself along (including stairs) without post-exertional fatigue. Fair enough, I could only take a few steps before my legs became exhausted.
- Pocket sprung bed breaks down in September 2016. Since then, every other bed I've tried out in shops/home is agony. I feel exhausted after lying down, it feels like all my muscles are working and I get the post-exertional fatigue as I would if I'd done too much physical exercise. This pain would begin to set in within an hour of lying down.
- The only place where I feel vaguely comfortable is on my sofa, which is foam on top of pocket springs. It's a big two seater, and one of the cushions was softer than the other. I slept on this side from October to January without much issue until the foam failed and the springs started poking up through. When I slept on the firmer side I found that I was a lot more physically fatigued on the following day, albeit nowhere near the extent of a bed.
- When soft side of sofa broke, had to get it fixed. The guy completely replaced the foam and spring unit, making it hard as a rock and thus unsuitable to sleep on. He did put some foam in the middle, which made the "firmer" side more comfortable.
- Conversely, when I put a duvet in between me and the firmer side of the sofa, I found that it increased my pain and fatigue, seeming to act as another hard layer.
- Should add that I've looked at the likes of water beds, Tempur and specially designed mattress overlays for pressure care. Hate them and get the same pain as on regular mattresses. If I was to speculate, I'd suggest that the pressure relief makes weaker parts of my body have to work more.
- Without the sofa, I probably would be dead by now. I can't even spend an hour on any of the hundred plus mattresses I've seen without feeling like my body has taken a beating, so I don't see how I could have survived. Not a case of not giving the mattresses a fair go, as I tried a pillow top mattress for a month immediately after my old mattress broke down and every night was worse than the night before, with my physical capabilities taking a drastic downturn in that time.
I'm stuck for what to do next. Feel like smashing my head off the wall. Any advice/solutions welcome.
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