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CDC Multi-site Study - An interview with Beth Unger
The CDC multi-site clinical assessment of CFS/ME is now underway, and Bob took the opportunity to interview Dr Beth Unger, the lead scientist in charge. The outcomes of this significant study are likely to be widely influential and the means by which the CDC employ objective measures...
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Canary in a Coalmine--Huff post!

Discussion in 'Action Alerts and Advocacy' started by Sushi, Nov 20, 2013.

  1. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Sushi, Nov 20, 2013
    #1
    beaker, Delia, leela and 3 others like this.
  2. SickOfSickness

    SickOfSickness Senior Member

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    Jen asked that we leave a comment on the article. Even a short one. It helps get the article viewed more.
    SickOfSickness, Nov 20, 2013
    #2
    beaker, Ecoclimber and aimossy like this.
  3. aimossy

    aimossy Senior Member

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    NZ
    aimossy, Nov 20, 2013
    #3
    SickOfSickness likes this.
  4. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Midwest, USA
    I did not see anywhere to leave a comment.
    Little Bluestem, Nov 21, 2013
    #4
  5. Ecoclimber

    Ecoclimber Senior Member

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    Mercer Island Wa
    Patients please post on Huffington Post Canary in a Coal Mine, the more you comment, the more the blog will be reviewed by HP and they might consider further articles on ME/CFS. Huffington Post is #69 on Alexa Top 100 sites so they get alot of exposure so please make a comment about your own personal account so thousands who read her blog will have a better understanding of ME/CFS
    https://tinyurl.com/nur23rk


    Eco
    Ecoclimber, Nov 21, 2013
    #5
    Blue likes this.
  6. caledonia

    caledonia

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    Cincinnati, OH, USA
    This is weird - I made a post and at the bottom it said:

    I've never seen that before...
    caledonia, Nov 21, 2013
    #6
  7. Delia

    Delia Senior Member

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    Ho
    how do you comment? In the box that says "start a conversation" ?
    Delia, Nov 23, 2013
    #7
  8. SickOfSickness

    SickOfSickness Senior Member

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    Yes. For others, that box is near the bottom of the page, under "69 people are discussing this article with 82 comments".
    SickOfSickness, Nov 23, 2013
    #8
  9. SickOfSickness

    SickOfSickness Senior Member

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    They may have moderation turned on to keep away some rude comments. Or just for spam filtering.
    SickOfSickness, Nov 23, 2013
    #9
  10. Delia

    Delia Senior Member

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    Tha
    Thank you!
    Delia, Nov 23, 2013
    #10
  11. Delia

    Delia Senior Member

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    Iowa
    I just spent two hours trying to set up an account there. I gotta give up now. This really sucks. I'll try again later.
    Delia, Nov 24, 2013
    #11
  12. SickOfSickness

    SickOfSickness Senior Member

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    They have an option to login with Facebook. And other sites I believe.
    SickOfSickness, Nov 24, 2013
    #12
  13. Starfive

    Starfive

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    Geeez...how hard can a site make it to sign up for an account. Been at it for quite a while and do not see how to do it without going through Facebook resulting in giving Huff Post all your Facebook data. And... I finally gave in and tried to use my Facebook account and could not get that to work. If anyone has info on how to sign up easily in order to post and support Jenn, let me know. Thanks
    Starfive, Nov 24, 2013
    #13
  14. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I also didn't want to give them access to Facebook or Gmail stuff, and gave up too.

    Sushi
    Sushi, Nov 24, 2013
    #14

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