1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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Canary in a Coalmine - Exclusive interview and film trailer help launch Kickstarter campaign!

Discussion in 'Phoenix Rising Articles' started by Firestormm, Oct 23, 2013.

  1. Ember

    Ember Senior Member

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    The Kickstarter campaign runs until November 22:
    Some of the rewards have limits though. A friend of mine pledged at the $155 level to get the ten-minute telephone conversation with Howard Bloom! There were only three of those and they're gone now.
    aimossy and SickOfSickness like this.
  2. aimossy

    aimossy Senior Member

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    Ember likes this.
  3. Ember

    Ember Senior Member

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    aimossy, Firestormm and leela like this.
  4. leela

    leela Slow But Hopeful

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    far out!
    aimossy and Firestormm like this.
  5. Ember

    Ember Senior Member

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    Backers are flocking to the $25 pledge:
  6. leela

    leela Slow But Hopeful

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    Isn't it awful that 47 of us know someone who died from this fricking illness. I chose that one specifically so I could add her name.
    beaker, Purple and aimossy like this.
  7. BeBe

    BeBe

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    HI, this is exciting. call me confused ;) but is it too late to "pitch my story"? I am often overwhelmed by the website and computer in general so stay out of the loop pretty much.
    diagnosed with this illness in Aug 2001. Read the newsletter today and need to connect.
    thankyou
    Ember and rosie26 like this.
  8. BeBe

    BeBe

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    hi sorry i guess it is done. I get so mad i cant even keep up with THIS stuff. best of luck to you with the film. sigh. I would love to tell my story I guess I have to write it down in total. I have kept a small diary over the years to vent in. that help[ed
    SickOfSickness likes this.
  9. Firestormm

    Firestormm Guest

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    No. It isn't too late to pitch your tale - as far as I understand. Visit the website here and contact Jenn direct :)
    rosie26 and BeBe like this.
  10. Ember

    Ember Senior Member

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    The campaign is still in full swing, having surpassed $100,000 now. And stories are still being
    requested, so do join in!
    beaker, rosie26, BeBe and 1 other person like this.
  11. BeBe

    BeBe

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    Anyway you have emboldened me to call it ME. i have described it as being hit by a truck with the worst flu in my life which I then have had for years. more to that of course
  12. BeBe

    BeBe

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    thankyou so much, best to you!
  13. BeBe

    BeBe

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    thankyou so much, best to you!
  14. Sushi

    Sushi Moderator and Senior Member Albuquerque

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  15. Firestormm

    Firestormm Guest

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    Canary - $200k.jpg



    :balloons::balloons::balloons::balloons::balloons::balloons::balloons::balloons::balloons:

    aimossy and Simon like this.
  16. Firestormm

    Firestormm Guest

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    Canary in a Coalmine feature on Al-jazeera America 01/01/2014:

    Part I - http://america.aljazeera.com/watch/...meactivistslaunchuprisingfrombedspartone.html

    Part II - http://america.aljazeera.com/watch/...meactivistslaunchuprisingfrombedsparttwo.html

    "It's a devastating disease with a "lousy name." Two women are hoping to change attitudes about chronic fatigue syndrome.

    [​IMG]It'€s a mysterious and devastating disease that can leave people unable to work. Two women are hoping to change attitudes about chronic fatigue syndrome. "
    aimossy, Snow Leopard, beaker and 5 others like this.
  17. SickOfSickness

    SickOfSickness Senior Member

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    beaker, catly, Ren and 1 other person like this.
  18. leela

    leela Slow But Hopeful

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    Fantastic! This is the most realistic representation by media to date of what it's like to live with this crap.
    More kudos the Jen!
    beaker, ggingues and Ren like this.
  19. Firestormm

    Firestormm Guest

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    You can leave comments beneath the interview narrative:

    http://america.aljazeera.com/watch/...avethisdebilitatingdiseasewithalousyname.html

    Many all ready have :)
    aimossy likes this.
  20. Snow Leopard

    Snow Leopard Senior Member

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    Good job by Jen to find some sympathetic journalists. :)
    leela likes this.

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