1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Canary in a Coalmine - Exclusive interview and film trailer help launch Kickstarter campaign!

Discussion in 'Phoenix Rising Articles' started by Firestormm, Oct 23, 2013.

  1. Snow Leopard

    Snow Leopard Senior Member

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    Nice.

    I only contributed a little bit, I wonder where all the rest of the money came from? :lol:
  2. ellenelle

    ellenelle

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  3. SickOfSickness

    SickOfSickness Senior Member

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    Highest donations thus far:
    1 donated $5000
    4 donated $1000
    7 donated $500
    1 donated $400
    1 donated $275
    6 donated $250
    1 donated $200
  4. lnester7

    lnester7 Seven

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    Why the name??
    jeffrez likes this.
  5. Firestormm

    Firestormm Guest

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    The answer is in the article :)
  6. leela

    leela Slow But Hopeful

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    Holy Cow! $39,066!!
    aimossy, Ember and Firestormm like this.
  7. dannybex

    dannybex Senior Member

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    I think it's great they're considering mentioning the many possible causes or contributions to this disease. IMHO it's clearly not just a viral or bacterial infection. Everyone gets those and gets over them. That kind of narrow thinking (by some of the so-called 'top docs') hasn't gotten us very far.

    I commend these women for taking on this monumental project, and will make a donation myself ASAP. I just hope they can get more help from healthy peeps, so that they don't end up in a severe crash from the enormous stress of it all.

    Thanks too to Firestorm for the great interview.
    SickOfSickness, Firestormm and leela like this.
  8. leela

    leela Slow But Hopeful

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    !:thumbsup:!
    444
    Backers
    $41,982
    pledged of $50,000 goal
    29
    days to go
  9. Ember

    Ember Senior Member

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    Telling it louder...
    Louder than this...
    (SYNOPSIS...)
    beaker and aimossy like this.
  10. Ember

    Ember Senior Member

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    Canary in a Coal Mine shared a link.
    Great interview! Dr, Enlander announces a second Mt. Sinai ME/CFS Conference on November 20, featuring Drs. Klimas, Peterson and Schadt. All patients are invited.

    Jennifer Brea hints that Dr. Hornig may have found something interesting concerning gender differences in disease presentation. She asks us to share our stories and help raise the entire budget of $200,000.
    Iquitos and Firestormm like this.
  11. Firestormm

    Firestormm Guest

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  12. Ember

    Ember Senior Member

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    Done! [​IMG] :balloons:
    leela and Firestormm like this.
  13. leela

    leela Slow But Hopeful

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    I have not been this inspired/hopeful about anything M.E.-- ever!

    Yay Jen and yay us!!
  14. Firestormm

    Firestormm Guest

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    This is so cool. I mean 28 days to go and yet they have reached their minimum. Fantastic news. Now if more can be raised - they can interview more people and even come across the pond to my patch. Be great to think I might even get to meet Jen.

    Don't forget folks that they are still happy to consider applications for interviews :)
    aimossy likes this.
  15. Ember

    Ember Senior Member

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    TED Blog
    Illuminating an illness without end: Fellows Friday with Jennifer Brea
    Posted by: Karen Eng

    “I believe that we will make a beautiful film and it will change things forever for our community.”
    SickOfSickness likes this.
  16. leela

    leela Slow But Hopeful

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    It's an excellent interview. She is so articulate and down to earth.
    SickOfSickness, aimossy and Ember like this.
  17. Ember

    Ember Senior Member

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    Jennifer makes an excellent spokesperson. Here's her 2009 TED Fellow Profile:
    aimossy likes this.
  18. Ember

    Ember Senior Member

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    OUR GOAL: $200,000, 6509 backers, 28 days

    "We want to become the most popularly supported documentary film in the history of Kickstarter. 6509 backers will get us there. It only takes $1 to write a new story and change the future."
    beaker, SickOfSickness and aimossy like this.
  19. aimossy

    aimossy Senior Member

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    so to get a donation to this film I have to do it within this 28 days is that right?
  20. leela

    leela Slow But Hopeful

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    Not necessarily. You can do a regular tax-deductible donation through other channels; I think there's a place on the kick starter page that links to it.

    E.T.A.:
    beaker and aimossy like this.

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