Never Give Up
Collecting improvements, until there's a cure.
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For the whole story click on this link:
https://form.jotform.com/60154004869151
Here's what they are looking for:
Tips for a recording a new video
Don't already have a video? Record one! We are looking for videos that are on the short side, ideally no more than 3-5 minutes in length.
You can film:
– A video a diary: 3-5 minute testimonial about what life with this illness is like for you
– Something that is purely visual: For example, a video that documents your symptoms (e.g., seizures) or some other aspect of the illness for you (e.g., use of mobility devices, face masks, ear plugs, dark rooms, caretaking, or other aspects of your life that can convey what this is all about, even if we turned the audio off)
https://form.jotform.com/60154004869151
Here's what they are looking for:
Tips for a recording a new video
Don't already have a video? Record one! We are looking for videos that are on the short side, ideally no more than 3-5 minutes in length.
You can film:
– A video a diary: 3-5 minute testimonial about what life with this illness is like for you
– Something that is purely visual: For example, a video that documents your symptoms (e.g., seizures) or some other aspect of the illness for you (e.g., use of mobility devices, face masks, ear plugs, dark rooms, caretaking, or other aspects of your life that can convey what this is all about, even if we turned the audio off)