Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Canary in a Coal Mine: A film about life with M.E.

Discussion in 'Fundraising' started by Ember, Oct 22, 2013.

  1. Ember

    Ember Senior Member

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    Canary in a Coal Mine
    Canary in a Coal Mine: 60.22% (990 votes) :thumbsup:
     
  2. Ember

    Ember Senior Member

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    Canary in a Coal Mine
    [​IMG]
     
    beaker, leela and allyb like this.
  3. Ember

    Ember Senior Member

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    Canary in a Coal Mine
    Photo...
     
  4. Ember

    Ember Senior Member

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    In Part 1 (2:50), Shiela MacVikar says, “Jennifer has chronic fatigue syndrome, a severe form of myalgic encephalomyeletis.” Oh well...I'm sure that Jen presented her diagnosis the other way around. Part 2 doesn't miss a beat! :thumbsup:

    In the full article Nicole Grether writes, "After more than a year of repeated illnesses, infections and doctors not knowing what she had, Brea was finally diagnosed with a severe form of myalgic encephalomyelitis, better known as CFS." Does she mean 'myalgic encephalomyelitis, a severe form of CFS?'

    All three pages are accepting comments.
     
    Last edited: Jan 3, 2014
    SickOfSickness and Bob like this.
  5. lnester7

    lnester7 Seven

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    Would be too horrible to post on every single person's wall in my facebook??? This is great campain for education.
     
    Ember and beaker like this.
  6. Ember

    Ember Senior Member

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    Concerning the tone of the closing comment, Jen wrote:
     
  7. Ember

    Ember Senior Member

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    Canary in a Coal Mine

    TELL AL JAZEERA WHAT YOU THINK
     
    lnester7 and Bob like this.
  8. leela

    leela Slow But Hopeful

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    Couchland, USA
    I can't get the comments to open on either browser,even when I disable adblock. :(
     
  9. Ember

    Ember Senior Member

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    Canary in a Coal Mine
    5 hours ago

     
  10. Ember

    Ember Senior Member

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    Last edited: Mar 5, 2014
  11. Nielk

    Nielk

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    From Canary in a Coalmine Facebook page:

     
    Sasha, NK17 and catly like this.
  12. Sasha

    Sasha Fine, thank you

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    On the Canary FB page today:

    https://www.facebook.com/canaryfilm/posts/490568867747518

    While it's a pity that Canary is still a long way off, we must keep in mind that it's being made by a PWME who is very sick indeed. We must be grateful that she's able and willing to do this at all. I'm in constant awe of what she's managing to achieve from her bed. I think she's amazing!

    And it will be better for these two films not to be coming out at the same time so that we can give each the boost it needs individually and make the most of the benefits that each will bring.

    :thumbsup:
     
    leela, Cheshire and Bob like this.

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