1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Simon McGrath looks at theories that microglia, the brain's immune cells, might be overactive and driving the symptoms of ME/CFS and fibromyalgia.
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Canary in a Coal Mine: A film about life with M.E.

Discussion in 'Fundraising' started by Ember, Oct 22, 2013.

  1. Ember

    Ember Senior Member

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    A film about life with M.E., the most prevalent and devastating disease your doctor has never heard of.

    by Jennifer Brea


    Read more about this new ME film.

    An interview with Brea will follow shortly on CFS Central.
    M_Dramatic, beaker, merylg and 2 others like this.
  2. SickOfSickness

    SickOfSickness Senior Member

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    Big goals! :) Great title.

    Great they teamed up with those authors and artists! "Shoot your story" is a good idea for a perk for a good donation.

    I feel sad that they will need a lot of rest time in between shooting. But glad Jennifer is well enough to do this project.

    Including self-filmed diaries is another wonderful idea.
    M_Dramatic and Ember like this.
  3. minkeygirl

    minkeygirl Senior Member

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    Left Coast
    My favorite line is "how are we going to go to the mall when we can't even get to the mailbox?"
    merylg likes this.
  4. Ember

    Ember Senior Member

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    Canary in a Coal Mine
    M_Dramatic and aimossy like this.
  5. Ember

    Ember Senior Member

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    Canary in a Coal Mine shared a link.
    near Princeton, NJ, United States
  6. Ember

    Ember Senior Member

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    Canary in a Coal Mine
  7. JT1024

    JT1024 Senior Member

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    Massachusetts
    beaker and aimossy like this.
  8. Andrew

    Andrew Senior Member

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    I just read there TED blog. That woman has really done her homework. It's actually one of the best articles about ME I've read.
    JT1024, leela, dannybex and 1 other person like this.
  9. Ember

    Ember Senior Member

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    Jennifer has the right background for the job. Here's her 2009 TED Fellow Profile:
    OUR GOAL: $200,000 and 6509 backers by November 22nd
    aimossy likes this.
  10. Ember

    Ember Senior Member

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    Jen wrote about an hour ago, “I just ask that you carry this campaign for me for a few days.” Unfortunately, the campaign seems to be taking its toll on her:
    Last edited: Oct 26, 2013
    JT1024, leela and aimossy like this.
  11. Bob

    Bob

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    England, UK
    Last edited: Nov 2, 2013
  12. Ember

    Ember Senior Member

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    Canary In A Coal Mine - Our Big Ambition
    Published on Oct 28, 2013
    http://j.mp/canarykickstarter

    "Let's change the face of Myalgic Encephalomyelitis ('Chronic Fatigue Syndrome')--forever."
    “It only takes $1 to make history:”
    https://www.youtube.com/watch?list=PLSX_kPpxAZX7uKr0d_gkQgs93Rg93xD3s&v=aSjglHBZMAk
    JT1024 likes this.
  13. aimossy

    aimossy Senior Member

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    backed it!
    JT1024 and Ember like this.
  14. Ember

    Ember Senior Member

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    “Watch this preview of early footage from our film about Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome"), Canary in a Coal Mine, with some scenes that did not not make it into the Kickstarter appeal. It's the movie in miniature, and one of my favorite videos:”



    855 backers
    $84,489 pledged
    24 days to go
  15. beaker

    beaker CFS/ME 1986

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    USA
  16. aimossy

    aimossy Senior Member

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    over 85,000!
    Ember likes this.
  17. Ember

    Ember Senior Member

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    Go Big or Go Home
    October 31st, 2013
    By Jennie Spotila
    985 backers
    $92,556 pledged
    22 days to go
    leela, beaker and aimossy like this.
  18. Ember

    Ember Senior Member

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    Bob, leela, JohnnyD and 1 other person like this.
  19. SickOfSickness

    SickOfSickness Senior Member

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    I believe the $200,000 goal will be reached. I really hope we all see it go over $250,000. Imagine, a quarter million dollars.
  20. Bob

    Bob

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    It's a shame we can't get the full funding for the Rituximab trial so quickly.
    But this shows that it's possible.
    When they've got the funding that they need, I think we should ask them to ask their supporters to help fund the Rituximab trial, and set up a kickstarter account for it.
    They could send out a message to each of their kickstarter supporters.
    biophile likes this.

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