Discussion in 'General ME/CFS News' started by Firestormm, May 22, 2014.
Thanks @alex3619 to be honest the little cancer is the least of my problems
holy sh---t. that is MADNESS. INSANITY
@Kati your is the personal story that should not exist, nowhere in a civilized country!!!
I really feel for you, I agree that we need to manifest and come out of our prisons, I just don't know how ...
I also understand completely what you mean by saying that the little cancer is the least of your problems.
You are a strong and courageous woman and we need you to be alive and kicking to fight for all PWME.
@NK17 thank you so much for these kind words and support.
i have received a lot of grunts for saying what I said and talking about my experience. In fact someone even told me that if the clinic ever closed, then it would be because of me.
All the while, said clinic did not even attempt to make things better, they just continued on their path of naturopath, self-help approach and let's not care about the physical part, let's just address the psycho-social part and contain them patients.
if patients are not being given a voice, as you know social media is just right there and will get a voice one way or another.
Patients with Me and FM deserve much much more than what's offered in Vancouver.
A CFS/FM/Lyme clinic probably wasn't the right place to be seen for open blisters on your foot, but should have been taken care of by your GP. You don't go to a specialist in one field expecting to get a referral to a specialist in another field. That's the GPs job.
@TigerLilea, that's your opinion. i got mine.
i will not discuss this online. The care I have received at the clinic has been appalling and completely unacceptable.
Since half of the CCDP doctors resigned with her, she could bring them to the U.S. and open their own Complex Chronic Disease Clinic.
You can also try a Google Site Search
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