The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

Can you suggest improvements to MEAction's letter re:the PACE trial?

Discussion in 'Action Alerts and Advocacy' started by Countrygirl, Dec 1, 2015.

  1. Countrygirl

    Countrygirl ME is not MUS

    Messages:
    2,698
    Likes:
    13,174
    UK
    I posted this elsewhere on PR, but, especially as the community is being asked on twitter to suggest improvements to the text, it probably deserves its own thread.

    http://www.meaction.net/wp-content/uploads/2015/05/MEAction–patient-view-of-the-PACE-Trial-Controversy.pdf

    Edited to say that I have now read elsewhere that they us not to download the document as there will be changes. So, do read from the link as well to ensure you have the latest version.
     
    Last edited: Dec 1, 2015
  2. A.B.

    A.B. Senior Member

    Messages:
    3,563
    Likes:
    21,599
    Criticism: the way the trial has been designed and run doesn't allow one to exclude that all results are due to methodological weaknesses rather than a genuine treatment effect. The lack of improvement on measures that are less susceptible to bias, and the lack of differences in long term outcomes also suggest this.

    Indeed, the author's behaviour is also consistent with this explanation. Robust results don't need to fear publication of data.
     
    Last edited: Dec 1, 2015
    MEMum, Countrygirl and worldbackwards like this.
  3. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,221
    Canada
    I replied with a few suggestions on Twitter.
    Not sure if there is somewhere they are specifically collecting feedback?
     
  4. Bob

    Bob

    Messages:
    9,846
    Likes:
    33,923
    England (south coast)
    Latest update tweeted today.
     
    Countrygirl and Valentijn like this.

See more popular forum discussions.

Share This Page