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can someone correct statement in this list

Discussion in 'Action Alerts and Advocacy' started by taniaaust1, Aug 5, 2014.

  1. taniaaust1

    taniaaust1

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    Sth Australia
    http://en.wikipedia.org/wiki/List_of_people_with_chronic_fatigue_syndrome Being not on that main CFS page I assume this wrong statement probably could be easily fixed by anyone who does editing on wiki. (Ive forgotten my password and what name I used to use there and havent been able to do things there for ages).

    The statement which bothers me is the thing there for Sophia Miza which says "Only person ever reported as dying from CFS".. its that "only" word. The most well known ME/CFS death or First recognised UK death from ME/CFS (or something like that that rather then stating only one person has ever died from this ill).

    Anyway, I hope someone can correct so people reading that dont come to think that only one person has ever died from this.
     
  2. Wildcat

    Wildcat Senior Member

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    Sophia was not the first person in the UK whose death certificate stated CFS as a cause of death. The first case, a male patient, did not get much publicity, and I am sorry but I cannot find his name. Perhaps another member can provide that information.

    .
     
  3. WillowJ

    WillowJ Senior Member

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    it's against Wiki rules to collaborate someplace away from there on editing an entry.
     
    Wildcat likes this.
  4. Wildcat

    Wildcat Senior Member

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    For general information on the deaths of people suffering from ME:


    http://www.ncbi.nlm.nih.gov/pubmed/16844674

    Health Care Women Int. 2006 Aug;27(7):615-26.

    Causes of death among patients with chronic fatigue syndrome.
    Jason LA1, Corradi K, Gress S, Williams S, Torres-Harding S.

    Author information


    Abstract

    Chronic fatigue syndrome (CFS) is a debilitating illness affecting thousands of individuals. At the present time, there are few studies that have investigated causes of death for those with this syndrome. The authors analyzed a memorial list tabulated by the National CFIDS Foundation of 166 deceased individuals who had had CFS. There were approximately three times more women than men on the list. The three most prevalent causes of death were heart failure, suicide, and cancer, which accounted for 59.6% of all deaths. The mean age of those who died from cancer and suicide was 47.8 and 39.3 years, respectively, which is considerably younger than those who died from cancer and suicide in the general population. The implications of these findings are discussed.


    PMID: 16844674

    [PubMed - indexed for MEDLINE]



    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~


    The ‘In Memorium’ list of deaths of people suffering from ME/CFS:

    http://www.ncf-net.org/memorial.htm

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    Last edited: Aug 5, 2014
  5. Wildcat

    Wildcat Senior Member

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    Wikipedia has sucessfully avoided including the presence of a Page on 'Myalgic Encephalomyelitis'.
     
  6. Wildcat

    Wildcat Senior Member

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    People with ME are at a distinct disadvantage when it come to engaging with Wikipedia editing.
    I have never come anywhere near being able to edit Wikipedia because my cognitive disabilities in learning new procedures, complex cognitive disabilities relating to processing visual information, and the complexity of the Wikipedia editing procedures. I think that is why some people with ME ask if others can edit the Page, because they cannot themselves do it.

    If discussion about editing a Wikipedia entry away from Wikipedia editing areas is against Wikipedia rules, that would exclude numerous cognitively disabled people (many diverse patient and disabled populations who cannot themselves edit), from discussing the Wikipedia entries with view to others editing them on the cognitively disabled persons' behalf. It could be argued as a disability rights issue.
    .
     
    Last edited: Aug 5, 2014
    WillowJ likes this.

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