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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@charles shepherd
Has there been any further clarification on changing G.P. to outside catchment area?
I believe the issue was in arranging home visits.
The G.P. I chose is stalling until this is resolved.
Thanks
Golden
For treatment I was offered very high does of prozac and amitriptyline together. No two ways about it.
If I were still ill it was because I was doing something wrong and not following what I was told to do.
Then I told my GP I didn't/couldn't take the medication for a few reasons, also my pharmacist refused point blank to give the two together saying they can be fatal.
They only wanted to give them from then on, so I feel I don't have a safe place where I can go to get treatment.
Because fluoxetine's metabolism (like tricyclic antidepressants and other selective serotonin antidepressants) involves the hepatic cytochrome CYP2D6 isoenzyme system, concomitant therapy with drugs also metabolised by this enzyme system may lead to drug interactions. Concomitant therapy with drugs predominantly metabolised by this isoenzyme, and which have a narrow therapeutic index (such as flecainide, encainide, carbamazepine and tricyclic antidepressants), should be initiated at or adjusted to the low end of their dose range.
@cosmo,
thanks for relaying your story.
Collective Medical Insanity. Its not easy to work with!
I was trying to get a G.P. outside my cachment area, more fruitless emails. And then start on the road to applying for benefits as I am very financially vulnerable and dont know how much longer I can go on like this.
Just cant get the help I need.
But its taken me straight into a mess. Your post reminds me perhaps its something I should not be contemplating.
http://www.drugs.com/drug-interactions/elavil-with-prozac-168-74-1115-648.html
http://www.drugs.com/drug-interactions/elavil-with-prozac-168-74-1115-648.html?professional=1
The risks of interaction outweigh the 'benefits'.
Dangerous combo. Good on the pharmacist for refusing point blank to dish them out. More points to The Pharmacy Team.
I'm so sorry to hear you have been let down with care too.
It's such an uphill battle and then if you get help it could just be the wrong kind.
I hope you get your new GP as you hope. If you need benefits then ask for help, it doesn't have to be about what your Dr says although it can help, I don't think mine did anything to help my cause but I have been awarded some anyway as I cannot work at all for a few reasons to do with my health.
So it is important to me to be able to choose a G.P. I think they ought to be obliged though to have websites about them and their interests and I would like to interview them before joining their surgery to get an idea of compatibility.
I was thinking of medical interests but I dont see why a website couldnt be more well rounded? Including hobbies, a photo, philosophy etc. I cant really see a problem with.
She has no clue really.Here's a summary by Julia Newton of how she treats PWME with OI:
http://www.meresearch.org.uk/wp-content/uploads/2014/06/Webinar-45-Prof.-Newton-blood-flow.pdf
It includes fludrocortisone and midrodine if conservative measures don't work. They also use beta blockers and calcium antagonists.
Maybe you can enlighten us, since you seem to think you have it all figured out?She has no clue really.
Maybe you can enlighten us, since you seem to think you have it all figured out?
Sasha,@charles shepherd - when I attended a specialist NHS ME/CFS centre some years ago (which I won't name), I would say that my treatment was caring and tailored to my individual needs and nevertheless totally, utterly useless, apart from getting better sleep meds for my insomnia. What was on offer was (surprise!) GET, pacing, and CBT. To their credit, they agreed I didn't need CBT and didn't push GET when they realised I was too sick even to establish a stable activity baseline. They listened to me and didn't push things when I told them they weren't working. That's why I'm describing them as being caring and as tailoring their programme.
There was no medical treatment, and that's the crucial issue.
I'm aware that Prof Newton offers testing for OI and treats it, but is there actual medical treatment for our ME available at any of these centres that you're naming? Or anything else that Prof Newton offers?
I've had referrals to immunologists, infectious disease specialists, cardiologist and so on over the years and although they're all caring people and accepted that ME is a neuroimmune disease, they didn't have anything to offer: they just didn't know enough about ME.
We desperately need people who are experts in our condition - not just with a single-discipline perspective on it - and will provide actual medical testing and treatment. I've yet to find anyone in the NHS who will do that.